Well everybody ,all being well it looks like I should make 70 in less than 3 weeks. An interesting year in so many ways. Firstly the length of time I wasted to simply transfer from indefinite DLA to PIP and even when finished there was a reduction in Benefit. I do feel so fobbed of by this government and their attitude to PWP . We who have the disease know only too well how the various stages you can go through on a daily/ hourly basis and the fact that I am over 6 ft and broad shouldered means ,that as long as my meds ( 18 plus tablets a day of various drugs) have the tremor controlled and I have had a nights sleep and I did not do too much the previous day and so forth I am told that I look well.
I also added to my drugs this last year Warfarin as I had a pulmonary embolism which was dealt with one Sunday…Our local hospital NHS was brilliant and hopefully I will not be looking to deliver a repeat performance.
Much to my regret I had to give up my involvement with a company where I had been invited to sit on the Board. I did so enjoy assisting them but I had forewarned the shareholders that the longevity of my involvement would be dictated by my health status. I still have contact with them and it helps me to maintain an interest in the Agricultural industry that I was involved in all my life.
So what next, I think that the time has arrived when I give writing a book a go. I knowalready that I have advanced sales of 4 copies as long as the family don’t share and pass it on,but it will be something to explain to all my family why my working life till I was 55 involved working 24/7 and even then I was still working 3 days a week till 60 and took up a place on the Board at 65 for 4 years… So what is this about. Really the manner in which we as disabled people,who through no fault of their own are being treated. I only achieved PIP wise because I battled for over a year and ended up at a Tribunal. I am sure that there are people out there who would not have coped with the attempts by the DWP to derail my claim
So planning,battling all political parties,writing a book, learning to use my mobility scooter and not tipping it over… Avoid any other health issues, keep writing to our own MP,and also the DWP when I feel that life for PWP is not been treated with the respect required. I will,of course continue to talk,write,lobby,annoy those who need to be told, but also retain my sense of humour,and the pleasure I get from having chats to alL
final thought for today is while the day started at 1.30 a.m on the positive side I will get my monies worth from Sept 6 2018 as long as I stay awake.