Hi Nicole,
Would love to chat... Don't know how to send a separate message though?!
E
click on my account, look to left of page blue box ( my messages) sorry to but in !
Hi
I was diagnosed with early onset aged 39 although I'd been seeing the neuros the my local hospital for over a year.it took a lot of phone calls and meetings befoe I was refered to the specialists at sheffield.
Within ten minutes I was diagnosed ,shocked..no I kind of expected it.
I have tremor in rght arm my right leg think it belongs to someone else,still i've go my sense of humour a loving amily and good friends.I get strange looks off the older generation when they hear me taking the proverbial out of the condition then when they find out ive got it it yo shoul see the look of shock on their faces.
The way i see it is I am still the same person I was three years ago it might take me longer to do things but if people cant deal with it their problem!
I find keeping positive helps and above all don't let it get you down it could be worse!
hi slippybathtub i was 34yrs old ,now 42yrs on sinemet plus/ sinemet cr night time,also had dbs but still smileling treat every day as a new day,not staying i dont get bad days but just snap out of it quick.
is that car yours.....
Hi gus,
Like yourself I take everyday as it comes and I wouldnt have it given me the lambourghini i drove was miles better!
Love your attitude Slippy :)
Hi young_onset
Its the only way to deal with this little problem thrown at us.....it doesnt stop me doing what I enjoy doing.
Well one good thing has come out of it I don't prepare meals anymore it tok me over an hour to peel 5 potatos recently(patience of a saint)....you should see me try and thread a needle!
Like i said it's only pd like i say it could be worse .
do what you can at moment and make the most of your life ,before it takes a hold of you! all the best
Hey there guys
I'm 37 dx 18 months ago. Looking to meet, chat, socialise with similar age people. Anyone based in the North West, Manchester way who has been to any of the local branch groups? They have no Early on set groups, so not to keen to rock up, and everyone be 60 plus!
ust would be nice to have people whom you can share your moans, compliants, share advice but also have a laugh and socialise. Just thought i'd give my husband a break :)
Hi Girlred
I am not in the North West but similar age to you ,so thought i would say hello as it were i was dx last August when i was 47 , luckily we have a younger peoples group in my area although only been once although i would go again , yes i was going to go along to the local group but it was more older people so choose the younger group ,
Hi girlred,
I live in Surrey but feel free to PM me if you want to chat. I'm keen to talk to younger people with PD like you are.
I need to look into local groups for younger people too!
E :)
Not quite young onset but I am officially classed as early onset, this is my story of how I found out I had PD.
First notices something was not right 2 months after shoulder surgery after walking up & down stairs set of a twitch. It's a couple of months later that after handing a work report to a very close friend of mine whom said why is your arm shaking that I said I know I know I am at DR's today after work thinking it was nerve damage from the surgery to which I got the reply are you really & promised her I was. (she's very protective of me) cried in her arm's many of times over several different reason's. (Shes also done same with me, mum & aunty dyeing, one daughter's relationship going down the pan then up again).
Turns out I'd had symptoms before not recognised walked 2 miles to my work each way & thought I needed a hip replacement, And just before that been on holiday to Norfolk for a 4 night break & found after what was supposed to be a 2 mile walk on the sand turned out to be 9 after returning to our caravan I could have happily decked my husband after that walk. Sent of for a nerve conduction study weird thing, came back normal that the penny then dropped as to what my condition was, I had not quite early onset but not normal either (46 to 47). My GP telephoned me at work to say she wanted to see me today had a 11.15 appointment line up to refer me to neurology, which was done & a month before my appointment my condition developed other symptoms ( restless leg syndrome & eyes getting worse) that I was then re-referred on the fast track seen in 10 days on a Saturday that I was then told suspected PD after about a 10 minute chat. Gave me the drug Pramipexole 0.088 micrograms that I noticed a difference in one pill on the Sunday morning I heavily suspected PD any way & it was confirmed after several blood test & a MRI scan. That I felt like I had be hit by a hgv lorry and slowly my world started to crumble before me & then I went in the learning mode & started to educating myself with a much information as I could handle so I have now come through that black cloud by dreaming it's above my head and I swim back through it & seeing me & Colin on a beach in Barbados with the water slowly tickling our feet & the palm trees blowing in the breeze. That's taken anti depressants counselling & lots & lots of tears various major rows with me nose to nose with my husband & people disbelieving me ( you don't look like you got PD & even being called a liar). That I'm now on a stick first thing in the morning from 20 minutes to 40 minutes some day's being good and some bad I'm still in full time work in the summer can manage a electric bike & in winter bus, husband or friend car ferries me. Stiffness & joint pain I'm now on L-Dopa & Pramipexole as well. And last night another spat with him at home that I then get 4hrs sleep after posting on this forum to another member & now to you, But I'm still in full time work about to start receiving PIP (personal independence payment) & working tax credits.
I like your positive out look I hope on the bad days it can inspire me and others to keep strong in fact I had a tattoo done to tell me to keep burning. Its the rings of my life with a spike going through the middle with flames at each end. Stay strong young_onset_83 and good luck to.
Thanks for sharing your story bettyblue.
Your very welcome anything I can help with please let me know xx