Feel free to add to the thread (and anyone else for that matter), like Blueeyes47 and Glenchass have, titled "Age and Date of Diagnosis".
Thanks Potplant for your post. The proof of your husband's success is in your last sentence. Brilliant! Thank you for sharing. I've read one too many stories where they really pick up your mood only to find at the end that the person had DBS, knowing that is not an option in a lot of cases.
Good to hear that you have the meds sorted out after your husband did not see a specialist for a long while. I've learnt that you have to be more proactive in decisions for this disease, there is no stock standard treatment.
Make you smile - when I was diagnosed in 2002 mry response was "But I'm never ill!"
During the following few days, as I was breaking the news to family & friends someone shared the following.... " If you want to make God laugh, tell him what your plans are"
Its not all doom and gloom ....ive had young on-set pd since i was 8 years old and im coming up to 43 in November.
I still work full time and am a football photographer and reporter at weekends! I had deep brain stimulation 5 years ago this month and the only thing that Im losing is my hair. Apparently the back of my head looks like a chimpanzee's bottom. Nothing to do with PD or DBS I might add.
My only advice is enjoy when things are good and tabs are working....and do as much as you can when you can !
Thanks! I guess I'm luckier than most as Ive grown up with PD and my muscles have developed to cope with the stresses and strains of everyday living and being able to walk , then being stiff , then beng dyskenetic are kind of the norm for me. I havent driven for 10 years but that was through choice ( I have a full licence ) and I use a wheelchair if necessary sometimes when on holiday - life is good!
Bigbee, Vertigo and a swimming head. Bang on! I like your description of this as it fits my symptom list. At present I do not take meds so it must be the PD alone that is causing this. It can occur with me during a simple task such as bending to tie a shoelace or when exercising. Arsene
a friend of mine has had PD for 12 years now, he has just got engaged! he works and travels regularly..
My father got dx this year..at the age of 59. the future terrifies me! but worrying changes nothing. as Mr Fox says, dx of PD makes u appreciate life! and its made me appreciate my Dad so much.
I dont have Pd.. but i attend the local meetings and run the website for the group.. i can pass on their advice - Keep Moving!
Last time I saw my neurologist and he told me about a patient he has who has been reasonably well and stable for......16 years. He goes hiking, among other things, apparently. We're all different - and the more you can do to help yourself, the better the long term outcome will be.
The proof of your husband's success is in your last sentence. Brilliant! Thank you for sharing. I've read one too many stories where they really pick up your mood only to find at the end that the person had DBS, knowing that is not an option in a lot of cases.