8 and a half years since diagnosis, and 18 months further on from my last post. Life is still good. I have a fantastic husband, lovely kids and wider family who help me, support me and make me laugh. I have a new bike which really brings me joy, bowling along on a sunny day. I have written a novel and a travel book. I started a vegetable plot this year, practically drowned in runner beans and have 80 huge onions stored away for winter. After I was diagnosed, I went from being a prolific reader to not reading at all. I don't know why. But I joined a book club and HAD to read a book every six weeks. It was all I managed for a while but in the last year I have read other books as well. The enjoyment of being lost in a book has come back. There are things that are harder to do but in some ways I am more at peace with myself than ever. It's a conversation you have to have with yourself over time. You have get there in your own way. I know some people aren't as lucky as me but I just wanted to give real hope to anyone newly diagnosed. This is what has worked for me:
Thinking of everything I've got and not what I've lost
Doing things I like doing
Resting and setting my own pace
Keeping up to date about the condition
Thinking about the timing of my medication - no-one knows better than me how I feel
Lastly, my worst fears are nowhere near being realised as my brain is still fine (although you may disagree!) and I believe much of that is due to the fact that I am no longer afraid.