Hi Graham sorry not replied sooner only I had an appointment to see my PD nurse, when I arrived she had a mask on and her eyes were all red and runny. Two days later I had the same condition every have I felt so ill. Any way it turned out to be the flu? It is just going but me being me I wonder what I had missed on our Forum, So in answer to your question G I have to take my Madopar one hour before bed and have to take all 3 together the CR stands for slow release so they work all night? or they are supposed too. Do they work well it is now 4-29 am and I am sending you this answer, so I will leave the ball in your court. x
Hello mary1947,
Thank you for getting back to me.
I can’t understand why your nurse turned up whilst she was ill and infectious. Dedication to the job isn’t always sensible.
I’ve been told that the CR capsules start working after an hour. My daily Modopar has 100 mg lasting about 2 hours, so if the same applies to CR, then 3 capsules should last 6 hours approximately.
I spoke to my NHS consultant this week as my Madopar doses aren’t lasting as long as they used to, and tremors are affecting me during daytime and also night time sleep.
Instead of increasing my Madopar, he has prescribed Rasagiline in the hope that it will boost the effect of my existing Madopar dose.
Interesting times ahead.
Graham
Hi GPD21 sorry I did not reply sooner. You have just hit the nail on the head as I myself find that somtimes either an hour before or one hours afterwards. I find that my meds are not working as well as they should, I was also put on Rasagiline nut it did not suite me. There is a new gdruh on the market do in March when I see the PD doctor my nurse is going to be in the roomas well. so watch this space,
Graham and I go back a long way, I have had PD since 2010 and I can count on my 2 hands how many times that I have had a goods nights. sleep?
So Aquacureman What whould you recomend.???
Well, the 30 days of Rasagiline had no effect whatsoever.
On the plus side, I’m currently getting 4 hours of sleep until approx 3 am…I then take 2 capsules of Madopar CR 100mg (after usual toilet visit), and then sleep on until approx 7 am.
After the Rasagiline ran out I experimented.
Once a day for a couple of days spaced apart…I took 4 x 50/12.5 Madopar capsules…the 3 other doses that day were my usual 3 x 50/12.5 capsules.
That extra capsule made a big difference and basically did what the Rasagiline was suppposed to do.
I’ll be asking my Consultant to increase my prescription during my annual February visit.