Annebernadette,
I apologise for going off like that,a trying day and well,its hard to explain.Thanks for the reply,hope i haven,t upset you.Will try and post in Rays new thread he has set up,if feel like that again.Am quite shocked and embarrassed at what i have written.Will have to keep a lid on things in future.There is a time and a place for outbursts like that,this forum is not one of them.Sorry.
Take care
Titan
hi titan
I'm sorry to hear your feeling so low at present.
Maybe some of what your currently feeling is because you stopped gambling. The buzz factor you were getting from gambling everyday has left a void in your life. I noticed during the first few days of not gambling, you tried filling some of the void by posting endlessly on this forum. However i would suggest the buzz factor this gives, is somewhat less than gambling. I worry that in your efforts to control your dopamine fuelled gambling urges, you could end up turning to other OCD activities. I know a number of people who thought they beat a particular OCD problem, only to end up replacing it with another. Maybe the time has come to seriously consider cutting down on the DA's?
take care all the best
bluey
I'm sorry to hear your feeling so low at present.
Maybe some of what your currently feeling is because you stopped gambling. The buzz factor you were getting from gambling everyday has left a void in your life. I noticed during the first few days of not gambling, you tried filling some of the void by posting endlessly on this forum. However i would suggest the buzz factor this gives, is somewhat less than gambling. I worry that in your efforts to control your dopamine fuelled gambling urges, you could end up turning to other OCD activities. I know a number of people who thought they beat a particular OCD problem, only to end up replacing it with another. Maybe the time has come to seriously consider cutting down on the DA's?
take care all the best
bluey
This forum is whatever we want it to be, Titan, no embarrassment necessary. It's OUR forum, in which we post whatever we feel like at the time.
Have a good day buddy.
Have a good day buddy.
dear titan, you have absolutely no need to apologise to me You were not in any way hurtful. You just came across to me as a kind, thoughtful man who was suffering. One whom I wanted to let know that he was cared for.
And no need to be shocked or embarressed (have you read my "poems" Now there's cause for embarressment!)
And no need to be shocked or embarressed (have you read my "poems" Now there's cause for embarressment!)
so is my spelling!
Thanks everyone,
With spirits lifted,and humbled,grateful also that there are people who care on this forum.They themselves going through their own personal hardships.Taking time to help others gives me the determination to shake myself out of the state of mind i keep drifting in and out of.ALL advice noted,and Blueeyes i see what you are saying.Cutiepie,also you know,i,m trying.Thanks.Annebernadette,there are no rules to poetry or expression put into words.Spelling is trivial,triveul,chiriveal,trivvial.In the midst of a sentence a misspelt word is easily understood.Spellings don,t make for a lesser or better person.Hope you are reading this Ali j,i know you worry about this.
All the best
Titan
With spirits lifted,and humbled,grateful also that there are people who care on this forum.They themselves going through their own personal hardships.Taking time to help others gives me the determination to shake myself out of the state of mind i keep drifting in and out of.ALL advice noted,and Blueeyes i see what you are saying.Cutiepie,also you know,i,m trying.Thanks.Annebernadette,there are no rules to poetry or expression put into words.Spelling is trivial,triveul,chiriveal,trivvial.In the midst of a sentence a misspelt word is easily understood.Spellings don,t make for a lesser or better person.Hope you are reading this Ali j,i know you worry about this.
All the best
Titan
Hi all, Titan it certainly sounds like you need some help regarding your depression. I too take anti depressants (venlafaxine) alongside my pd meds (stalevo). Ive just seen my neuro who has looked at my daily meds and is concerned about the 'mix'. I spent an hour in his office while he trawled through his books trying to locate the right 'mix' and he didn't seem to get anywhere. It really does seem a conundrum that most of us are facing. If the PD don't get us the meds sure will!!!
Glenchass
Glenchass
Dear Titan
sorry to hear you are feeling so 'down' It seems like only yesterday that you, me and Lizzy P reckoned us all to be at roughly the same 'stage' with PD and trying to stay off meds as long as possible then you went onto the meds. Do you regret starting them? I feel I have to ask the question as I feel i need to start the meds. now.
I've been on Amitriptyline ( an anti-depressant to help me sleep) for 5 years so will have to remind the neuro of this at our next meeting (monday 27th June)
sorry to hear you are feeling so 'down' It seems like only yesterday that you, me and Lizzy P reckoned us all to be at roughly the same 'stage' with PD and trying to stay off meds as long as possible then you went onto the meds. Do you regret starting them? I feel I have to ask the question as I feel i need to start the meds. now.
I've been on Amitriptyline ( an anti-depressant to help me sleep) for 5 years so will have to remind the neuro of this at our next meeting (monday 27th June)
hello renee, It's odd I was going to mention amitriptyline. It is a tri-cyclic anti depressant as opposed to the newer SSRI's. So presumably does not have the unwanted interaction with MAOI such as azilect. I am told it is an effective drug for s problems, panic attacks as well as depression.
Perhaps titan you could ask your neuro/nurse about this. There may well be a reason, specific to you, that it was not considered
Once again I should make it clear that I am not a qualified medical practitioner (I am just nosy!)
Perhaps titan you could ask your neuro/nurse about this. There may well be a reason, specific to you, that it was not considered
Once again I should make it clear that I am not a qualified medical practitioner (I am just nosy!)
Everyone is different. Amitryptiline gave me serious hallucinations, had to come off straight away.
Hi Titan
I too am so sorry that you are finding life so difficult.
I just want to echo what others have said....that perhaps you could look at cutting down the DAs. You could always go back on them after say 6 months if you felt you couldn't cope.
But when you read the posts of those who had to stop them because of the OCDs no-one posts that they have returned to them.
Life for my husband has been very hard since coming off them but he is so much more like the lovely man I married and he is slowly getting better at walking etc.
Psychiatric help and now physio are all helping to restore our lives to something worth living. The terrible struggle with the side effects of DAs is over and he says nothing would persuare him to take them again.
Please think hard. I would hate to see you post in later years saying your life was ruined.
Love GG
I too am so sorry that you are finding life so difficult.
I just want to echo what others have said....that perhaps you could look at cutting down the DAs. You could always go back on them after say 6 months if you felt you couldn't cope.
But when you read the posts of those who had to stop them because of the OCDs no-one posts that they have returned to them.
Life for my husband has been very hard since coming off them but he is so much more like the lovely man I married and he is slowly getting better at walking etc.
Psychiatric help and now physio are all helping to restore our lives to something worth living. The terrible struggle with the side effects of DAs is over and he says nothing would persuare him to take them again.
Please think hard. I would hate to see you post in later years saying your life was ruined.
Love GG
Hi,
Renee,it seems like an eternity ago that we debated the meds issue.I remember saying i would have to be desperate to start medication as all the tales were bleak.You have held out well.Chance is we are still at the same stage,but i have come to a point teetering on the edge with Mirapexin,and in conjunction with everyday life,problems have occurred.The very problems i was so flippantly saying i could master with self control.
I don,t regret starting meds.Some people can,t tolerate,full stop.The big issue for me is age.47 and sinemet does not thrill me.So remain as is,stationary while i regain control of what was slipping away..You may find that you may not be far off the same dosage requirement as myself to ease your symptoms.There again you may have been right for delaying for that extra time.We shall have to prepare proper notes sometime.
The meds for depression issue and Azilect is bizarre isen,t it Glenchass.It seems that Neuros and G.P,s only see the fatal connection when it is pointed out to them.Then realise there is no alternative.Having that snatched away,when the Anti depressants were in my possession was like another big set back.I will however look into the Amitryptiline,you never know.
Annebernadette,you misspelt again,that Nosey should be Rosy.
All the best and thanks
Titan
Renee,it seems like an eternity ago that we debated the meds issue.I remember saying i would have to be desperate to start medication as all the tales were bleak.You have held out well.Chance is we are still at the same stage,but i have come to a point teetering on the edge with Mirapexin,and in conjunction with everyday life,problems have occurred.The very problems i was so flippantly saying i could master with self control.
I don,t regret starting meds.Some people can,t tolerate,full stop.The big issue for me is age.47 and sinemet does not thrill me.So remain as is,stationary while i regain control of what was slipping away..You may find that you may not be far off the same dosage requirement as myself to ease your symptoms.There again you may have been right for delaying for that extra time.We shall have to prepare proper notes sometime.
The meds for depression issue and Azilect is bizarre isen,t it Glenchass.It seems that Neuros and G.P,s only see the fatal connection when it is pointed out to them.Then realise there is no alternative.Having that snatched away,when the Anti depressants were in my possession was like another big set back.I will however look into the Amitryptiline,you never know.
Annebernadette,you misspelt again,that Nosey should be Rosy.
All the best and thanks
Titan
Hi Goldengirl,
Thanks for understanding,will see how things pan out.Have actually got a plan of action.We shall see if awareness can help .
Same old me eh!
All the best
Titan
Thanks for understanding,will see how things pan out.Have actually got a plan of action.We shall see if awareness can help .
Same old me eh!
All the best
Titan
Hi GG, long time no speak. Glad to hear you're both struggling through.
These drugs are seriously dangerous. Your OH's DA (to him) was just like being on heroin, and having come off it he's naturally going through "cold turkey".
Cold turkey for a heroin addict is notoriously difficult and painful. Having to go through all that whilst being a PD sufferer as well is unimaginable.
I salute you both.
Ray.
These drugs are seriously dangerous. Your OH's DA (to him) was just like being on heroin, and having come off it he's naturally going through "cold turkey".
Cold turkey for a heroin addict is notoriously difficult and painful. Having to go through all that whilst being a PD sufferer as well is unimaginable.
I salute you both.
Ray.
I was taking 20mg of amityiptyline for mild anxiety before being dx in September 2010. I was having problems with bad muscle contractions in my right foot so I was prescribed Azilect. When I read the info leaflet I noticed the possible interactions with antidepressants so after mentioning this to my GP it was decided that I come off the amitriptyline. However over the next few weeks the muscle contractions got steadily worse. I rang the PDUK helpline and the nurse checked it out and said it was safe to take both Azilect and Amitriptyline. My PD nurse also spoke to a drug company rep who also said it would be ok. I therefore went back on the amitriptyline and whilst the muscle problem hasn't gone away completely it is much improved. The dose I take is quite low, I know people suffering depression usually take a higher dose so it would probably be wise to check.
Hi T.
After our discussions re Azilect v Citalopram, I scared myself about this possible clash.
As a result I decided to cut down the Citalopram significantly over the weekend.
Do you think I went too far too soon?
Ray.
p.s. I also had a major flashbck to the bad times a couple of days ago, very scary. Not sure how/if this will/did affect me.
.
After our discussions re Azilect v Citalopram, I scared myself about this possible clash.
As a result I decided to cut down the Citalopram significantly over the weekend.
Do you think I went too far too soon?
Ray.
p.s. I also had a major flashbck to the bad times a couple of days ago, very scary. Not sure how/if this will/did affect me.
.
Hi Ray,
Well i was a little perplexed that you haden,t responded quicker.Pleased now that you have however,because you have taken the Two together for quite a while.The doc has told me heart problems have been linked to the pairing also.
I have been having a bit of a turbulent time at the moment and as a result visited the doc again this morning regarding something for depression.Being in a mode were i just can,t be bothered and having heavy down periods reflected in my postings.Anyway,all modern Anti-depressants it seems do not sit well with Azilect.It makes me wonder about the long term and indeed the short term effects of Azilect to be honest with you.
Amitriptaline has been suggested,but the doc said this now is used mainly in pain relief.So i await his investigations and hope he finds something.Don,t really want to stop the Azilect to take it.Funny though that many do not take kindly to Azilect,and again makes me wonder.
As regards to stopping something taken over a long period of time,i would consult your doc first and withdraw slowly.Or who knows what may happen,considering the fatal links attached.
All the best
Titan
Well i was a little perplexed that you haden,t responded quicker.Pleased now that you have however,because you have taken the Two together for quite a while.The doc has told me heart problems have been linked to the pairing also.
I have been having a bit of a turbulent time at the moment and as a result visited the doc again this morning regarding something for depression.Being in a mode were i just can,t be bothered and having heavy down periods reflected in my postings.Anyway,all modern Anti-depressants it seems do not sit well with Azilect.It makes me wonder about the long term and indeed the short term effects of Azilect to be honest with you.
Amitriptaline has been suggested,but the doc said this now is used mainly in pain relief.So i await his investigations and hope he finds something.Don,t really want to stop the Azilect to take it.Funny though that many do not take kindly to Azilect,and again makes me wonder.
As regards to stopping something taken over a long period of time,i would consult your doc first and withdraw slowly.Or who knows what may happen,considering the fatal links attached.
All the best
Titan
Thanks.
Amytriptiline gave me hallucinations, I came off it straight away.
I think the best course would be to return the citalopram to where it was, and wean off the Azilect.
Ho hum...
Amytriptiline gave me hallucinations, I came off it straight away.
I think the best course would be to return the citalopram to where it was, and wean off the Azilect.
Ho hum...
5 years ago my primary Dr. prescribed me Paxil even though I was taking Azilect. The pharmacist questioned the prescription however my doctor ignored him. What a nightmare. Almost ruined my life.