A lot of wise words there, I do feel sad for you, so young and already life is kicking you when youre down , so how can I convince you that you are much much better than you think you are, I do understand that the horrible symptoms you feel are making you feel unworthy, and as a young lady you should be out there enjoying life,is that one of your goals Suzy, or are you the quiet type who loves peaceful picnics in beautiful countryside are you happy sitting listening to your favourite music with a good friend at home or do you want noisy discos and flashing lights, there you have two opposites , I am the quiet sort but m Iy wife loves to dance It used to make me insanely jealous, but I quickly out grew that and we settled down together, she was a great mum to my daughters I had gained custody of my kids when my wife divorced me. I did not even have to go far to find the love of my life, she lived opposite, she made me very happy and still does she is my angel who cares for me and is my best friend, as love developes it changes from intense passion to a gentle friendship which is my preference. I dont have much choice now anyway, there is some nice guy out there right now and if he managed, to catch your eye, you know the scenario eyes across a crowded room, or supermarket guy sees very pretty girl , and you are, then off you go he will love you with all his heart and never let you down ,it happened to me Suzy,you will regain your health and your life will be good Iknow you can do this be strong and fight back it will be worth it.
Just one more word, Suzynola7, and then I'll take a break from pushing into your life and giving unsolicited advice. 23? No wonder he may prove unreliable! Men don't even get interesting, much less mature, until at least 30.
Hehe thank you J, yeah he is young but when we met I thought he was more mature than me! I dont mind your opinion at all. And thank you for your insight Fed, I am trying to work on my confidence but im finding it near impossible. We kinda met as you just described, I walked into a pub and he was playing in his band and he forgot what he was playing cos he said I was the most beautiful girl Id ever seen =) I went and met him and in the end it went well although it was dodgy at first. He has a tendency to bottle things up and he tries to please everyone and was very stressed, I had no idea cos he hides it so well. At first he was a mess and I thought he was gonna end it and he seemed so confused but I just listened and let him vent, then he got upset and we went and sat in the park and talked for 3 hours about everything, Ive always been honest about my health stuff but I really tried to explain how it all makes me feel and how I try and deal with things. My health is an issue I think but the main reason being is that he said he hates that he cant help me, he always wants to help and 'fix' people. He is very caring which is why this recent behaviour shocked me! He said Im 10 times as brave and strong as he'll ever be and he just wants to try and seem strong too for me but I told him thats not necessary, just him being himself and being there is enough for me, I understand its a lot to take in, he admitted its hard to get his head around how somebody can have so much wrong cos hes never experienced it or known anyone like me. But after he got it all off his chest he was back to the person I know and he said he really does want to be with me. I know theres a chance this will all happen again and if it does then it will have to end but I want to give it a second chance. And Fed Im definately not a clubbing kind of person, I do prefer more quiet activities but maybe not picnics cos I find it hard to get up if I sit on the floor and Im allergic to grass haha! See, Im a pain in the arse! I do love music though =) Thanks everyone x
I think its going to work for you girl he sounds as if he wants to be with you, and if you dont mind me saying so ,, I dont blame him, some guys especially young ones have not mastered the art of whispering sweet words, they get tongue tied and shy so give him time and it will all click into place sunbeam.
So pleased to read your post, Suzy! Many good signs in what you reported --
You knew to listen and let him talk until he worked his way through what he was feeling and was able to calm down. The simple fact that you two were able to discuss your relationship for three hours is a wonderfully positive indicator.
Then he recognised and admired the courage you are summoning to deal with your illness. That is a sign of empathy that not everyone possesses. True, this may happen again, but you have seen that your relationship benefits from openness. Perhaps it won't end.
Aww thanks everyone, I really do appreciate the support =) you're a charmer arent you Fed! =P Thanks CC, yeah I do need something positive going on or I really struggle to cope. Thanks J, yeah Im glad Im a listener and not an argumentative person, it probably would have ended otherwise! I just hope he can see now he can talk to me and not bottle things up, Id rather know what hes thinking, even if it does hurt me a bit! Just like he cant imagine what its like feeling ill and in pain all the time, I cant imagine what it must be like seeing a girl you like and have her say 'oh by the way Im in constant pain, get paralysed randomly, cant stand or walk for long, cant eat much, have a tremor etc' when you arent used to being around ill people, it must be really hard. And obviously I didnt quite break it to him like that hehe, but I did tell him everything before we got together, unfortunately my neurological symptoms have worsened even in this short space of time, and I had a leukaemia scare a few weeks after we got together (turned out the chickenpox id got for a second bloody time had stopped my blood clotting, Im so lucky!) so it has been awful for him too! Well at least that stress is over and my tremor is back to normal now! Thanks so much everyone! x
I am very pleased you have sorted things life is much easier with a willing partner, keep us updated Suzy you are very young and have a long haul, remember all on this Forum are wishing you the very best of best things and will always offer support whenever its needed.
i was diagnosed with my parkinsons nightmare at the age of 32, what with my neurology specialists taking just over 3 years to finally make the PD Diagnosis.............Some of your symptoms does sound like Parkinsons , but theres a few other that are similar to other illnesses, so pretty lady lol keep your pecker up as they say *winks* i guess yor under a number of medical exports doing every test under the sun ??.................im not a churchie type of guy lol or do i pray unless my rugby team are playing hehe but i will send a few for you, you seem a very lovely young woman , and with me being diagnosed at 32 i know where yor coming from you being only 28.
Please take care and be safe
you are in my thoughts and wishing you the very best of luck suzy
Aww your all so lovely here! =) thanks for your support Fed, your very kind. Hi Hugh nice to talk to you, did they try and diagnose you with anything else during those 3 years? Im actually not seeing any doctors, havent for years apart from GP, i always just get discharged grr, waiting to see a neuro now though. Thank you =) and thanks for the pretty lady comment both of you hehe
Just had a nice date night at the cinema which was good but I choked on my dinner 3 times beforehand (everything has got stuck in my throat today!) And a got a blood blister on my toe from tripping up the pavement argh, i wish i could pick my feet up more!
I'm familiar with that trick of tripping over nothing! I noticed that I did it more often when wearing certain shoes, so I discarded about three pairs recently. But occasionally I still fail to lift my foot high enough to clear the sidewalk with the toe of my shoe. It's hard to remember everything at once: lift your feet, take long strides, walk faster, stand up straight, etc., etc.
I'm glad to see you're getting out and enjoying yourself, though!
Thanks, yeah I need to have the occasional outing to look forward to to get me through the week! My boyfriend is all happy and excited about being with me again now, the change since the weekend is remarkable! So thats nice. Oh yeah I know what you mean, if I really try and walk 'properly' i look ridiculous (even more so hehe!) I cant do big strides however hard I try, my muscles dont stretch that much! It was partly my fault i tripped, I was wearing flipflops =S I like them though! Got my neuro appt through today, september 25th....still a lot longer than I wanna wait but at least its not 18 weeks like I was told it might be! Hope your ok today J x
I just got a cancellation so im seeing the neuro next thursday, woohoo! Such a relief, I just hope he can help me. I couldnt make it into work again today, feel so guilty :-(
Yes. I am a bit at a loss to know what to write. I am 81 years old and was diagnosed about 8 years ago.i am on a quite high dose of dopermine plus othER Things to try to control the disconesia which has come recently from taking higher doses of dopermine to control the. Awful discomfort 'in my legs which is quite often.is that enough?
Yes, you wrote enough to get started. Welcome to the forum! You will find lots of people here who have years of experience in living with Parkinson's disease. Your diagnosis at age 73 was later than the average, but it sounds as if some of your symptoms are troublesome. I have had PD 17 years now and am 68 years old. So far, I've been lucky at controlling my symptoms with medications. However, I do share with you that discomfort in the legs. I do as much exercising as I can, which helps a bit.
Lol hey you should see me !! hehehe especially when im on a energizer bunny day wow i could clean a bus in about 1 minute flat, its a little bit of a pain at times, im not sure whats the best , being in a stiff and slow mode or being so hyper its difficult to control wow suzy you been on a date huh.......whos the lucky guy and more imporantly lol hope he took you home in a brand new ferrarri ?? lol
hope you had a great time suzy & you both behaved yorselves lol well to a cerain extent anyways hehehe
I never have energiser bunny days, I wish! It was just a date with my boyfriend, we try to do something once during the work week. And no I wasnt driven home in a ferrari hehe, luckily I can usually manage the bus nowadays, I hate wasting money on cabs! Well now Ive got this cancellation and see the neuro next thursday I might soon know whats going on! =) I really hope so anyway, Ill be gutted if he cant tell me whats wrong
