My mother was diagnosed with advanced Parkinson's 2 years ago. She is now taking Sinemet 6 times a day with a slow release dose at night and also has the patch. She has been suffering from burning feet, painful neck, palpatations, severe stomach bloating and urinary frequency.
As she was suffering from wearing off symptoms her specialist changed her to Stalevo. However on the new regime all the above symptoms were multiplied. She is now back on her old regime of Sinemet.
After discussions with the nurse and specialist they feel that the burning feet, palpatations, bloating and urinary frequency are not associated with the Parkinson's but may be due to other problems or anxiety. Does anybody have any advice or does anybody else suffer from these symptoms? It is so hard to decipher if symptoms are due to Parkinson's, wearing off symptoms or the actual medication itself. My mother has had gynaecological tests for the frequency with nothing wrong in that department, she has had thyroid, diabetes tests for the burning feet. She herself attributes it to Parkinson's symptoms and feels slightly better an hour or so after taking meds but then the cycle starts again.
She is still suffering from all these symptoms on the old regime and the wearing off symptoms and feels she requires more medication however the specialists have advised her to reduce the meds in case the symptoms are side effects with a view to increasing the patches instead of the Sinemet to reduce the bloating. She is back to square one with no answers regarding her distressing symptoms. Any advice would be really appreciated.
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