the electric bed as alji describes is a must as the disease progresses and invaluable to carer's. I don't know about the sheets that fit the beds you may buy but we found Ikea single sheets are larger than any others and are much easier to put on,saves all that struggle. Do get in the OT's if you need any other gadgets there are a lot available.
ps a tip on getting medication stains off carpets or other fabric we always use triple A neat with a cloth the only stains I couldn't get off was the wet room floor so if any of you are thinking of having this do choose a dark colour for the floor.
We also had all our walls around the house emulsioned as you can then just paint over the marks.
I am so happy we bought an adjustable electric bed years ago because now I could not do without it for my husband: in the morning I adjust it to a sitting position for him to have his mouth cleaned, have his coffee and his Sinemet, then I wait for a minimum of 30 mins before the medication takes effect and he can then rise from the bed and go to the sitting room. Without this bed, he would not be able to walk safely, not even with a frame.
Thanks for getting back, the triple AAA is a carpet cleaner you can get from most stores/supermarkets and it is brilliant at getting those stains off from med spill or dribbles, especially madopar dispersal or the apo pumps we used it neat on a clothe. Glad to see some people using the bed well as when I was involved with the local branch a lot of older ladies found it very difficult in getting their husbands to the bathroom in the morning to wash, I always say if you have someone to get you a cupper and a biscuit take it in bed and wait until it works it is so much easier. If you live alone a good tip is to have a spare bottle of water by your bed and/or chair with a tablet in a safe container and a biscuit so that if you fall asleep and when you wake up you can't move very well it is all at hand, it will take the stress out of it.Riser chairs are great but my friend has trouble getting out of that as he hasn't the strength in his arms, I suggested having a walker near but he couldn't even manage that so he worked out that if he turned his hands around the other way to what you would normally do he can manage.
If you buy silk sheets which makes getting into bed easy be careful as a few people have gone straight out the other side!fun eh. As regards other equipment there are lots of different things that the OT can get even mats that buzz when someone gets out of bed, it goes off to let the spouse/carer know what's what'.
If any of you needs things like bed mats I used the children's one as they tuck under the bed easier, I found Huggies Dry nites best.Also if and when you really have a problem lifting the social services will put in a over head hoist, they are very good and its only a few screw holes in the ceiling and once they are taken it leaves no mess or big holes.
If people have difficulty getting in and out of cars and haven't got a seat that turns a plastic bag on the seat is a great help, anyway I hope there are some useful tips for you there if you don't know them already.
PS if you are deaf have a word with that organisation as I had a buzzer for thing like the door bell and phone and another ring for my husband when he wanted me.
I don't really see a need for one of those adjustable electric jobs, since I like to be up and about as soon as I wake up (usually about 6 o'clock) and very rarely have breakfast in bed.
I have tried memory foam mattresses and don't like them. I find it a struggle to turn over. Better, I find, with a nice firm orthopaedic mattress which doesn't sag. Since we spend nearly a third of our lives sleeping, choosing the right bed or mattress is important.
The reason I have suggested we will be be better off with a rise and recline bed is because my husband cannot get in or out of bed on his own . Or Kingsize bed is too high for him , he isnt a tall man . He throws himself as far as he can onto the be . (which isnt very far unfortunaltely ) and then I have to lift his legs onto the bed and the he has to shuffle himself further into the bed . Usually ending flat on his . He then Has breathing problems .
Needs to use toilet at least 3 times during the night . so that means my assistance once again in and out of bed .
Once he finally wakes which means I need to be awake as well because he cannot rise himself off his pillows .
I thought it mght be best to get an automatic bed which will lift his upper body and so make it easiet to get himself up . If usine a profile bed you have choice of rising the bed to help the person who needs to see to any other needs .
WHe already uses a riser chair , which takes some of the strain off me . I believe you can get a frame which you can use to walk and get out of a chair with ..
I usually kick off quilts, blankets etc., and end up frozen.
My bed has two rails to stop me falling out so if I can keep warm for longer, then I'm winnning !
the subjects of beds! The reason I suggested an adjustable bed is that as pd progresses most people will find it really useful and it is much easier for both pwd and carers whether that be spouses or paid carers.Also if you have problems with breathing or say flu it is so much easier to use.
Some people have got two beds pushed together then you don't disturb each other and many people with pd find they can't sleep so use the laptop while the other person enjoys blissful sleep. Of course if needed you can get a waterproof cover just for the one bed then as well .We tried all sorts of things but eventually had to sleep in rooms and had a bleeper, some people use the baby listner machines.
Regards getting cold with quilts falling off we used a light weight quilt but a double not a single which is better if you can manages it.
We also have a riser chair and that was very useful especially when my husband had reflexology, he was asleep in no time. You can get many different aids as I am sure some of you are aware, the tri fold walker is quite good to have by the chair if you can get it okay but maybe it would be best for you to discuss the problems with an OT as they may be able to get you a grab rail or something else to help in this situation. Just in case some of you didn't see my other note about hospital and riser beds we founf IKEA single sheets are bigger than normal ones and much easier to put on. If you have problems getting to the bathroom you can get commodes on wheels and shower chairs on wheel which was very handy for us getting my husband into the bathroom.
Hope that helps
Hugh aka welshbearuk
HuGH aka welshbearuk
Have you tried going through your GP /district nurse . They have been very helpful to us . arranged a wheelchair /nightingale nurse for advice / they have now ordered a profile bed on long term loan .
Not sure how long we will have to wait and am still considering buying one myself .
Any advice about what makes please
Take no notice of the 50% off offers that some of the big chains offer.If you want to know why and cannot guess e mail me.
Im planning to buy a bunk bed and keeping only the lower part…
Hopefully the safety slats will hele me to move about more easily
very firm mattress as well
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Got a homylink mattress for my gramother who have a parkinson, she had a very old mattress and kept saying she can’t sleep. We had a good look around, she likes medium to soft mattress. We decided on this mattress name homylink, because of 1 the price (OAP budget) , 2 the quality and 3 because it is part spring and part memory foam. The mattress was delivered in a sturdy cardboard box, vacuum packed in a plastic package. Very heavy to move but 2 of you can move it to upstairs. Be careful when you open it, it’s just explodes when you cut the plastic wrapping!! We left it for 72 hours to fully expand and she’s been using it now almost 2 weeks. She’s says she’s been having the best sleeps for a long time and not waking up throughout the night. The mattress is nice and thick, and it’s a medium soft mattress, it has a decent bounce to it. Would recommend, it’s exceptionally good value for the price.
Or maybe you could come and have a look with it. Homylink pocket sprung mattress
This summer, my husband and I also decided to change the mattress, because one morning we realized that each of us woke up at least 5 times a night, although there were no surrounding irritants (dogs, children, screaming, loud bangs, air, pillow ) The basic items that we installed for our future mattress was: memory foam, comfort foam, high-density base support foam
I conducted a survey among relatives, friends, I was looking for information on the Internet - crazy After these actions, I chose 2 companies that are worthy of my and your attention -
LUCID and Zinus. The first company provides budget products, but quality does not suffer from this. But finally, I chose Zinus. Its mattress fully suited our requirements. I won’t rewrite all its characteristics, which you can find on their official website/ or in one of the reviews that I found and which helped me make a decision.
I just say that we are satisfied with the purchase and our problem has been resolved. Perhaps someone can also give a positive review of this mattress.
Memory foam mattresses are not the best decision, because they may be a cause of endless pain in neck and back, I got consultations from the specialists that firm mattresses are much more better than soft ones. Moreover, they are more durable, as a rule.