My OH has been having paranoid delusions, all directed at me and relating to electronic messages that I am sending to make sexual assignations. Requip is being reduced to try and deal with this, but he is rapidly becoming physically incapacitated as a result of that reduction. I feel bad that this is as a result of me not being able to deal with the delusions.
Anyone in the same boat? Any suggestions?
I was in a similar situation in that I had a different opinion to the actual truth. I stopped taking the medication that had been prescribed and it was a last resort medication at that and so I stuck to taking Madopar which helped a bit. The medication was to help with tremor but didn't work and so I have since had the DBS done. Has your husband been on any other medication for his problem and to try to give you more help can you tell us all what your husbands symptoms are so that myself and others can offer you advice you seek.
He has been on an extraordinary cocktail. At present he is reducing the requip to try and reduce the delusions; currently on 1.5 mg per day and due to reduce to 1mg in about 10 days. He also takes madopar 3 times per day and sinemet at night. The plan seems to be to get rid of the requip gradually and replace with opicapone to try and deal with the physical problems resulting from the reduction in requip. These problems are increased tremor, severe weakness, back pain, struggling to dress himself.
What is DBS?
My apologies Blossomdeary, DBS is Deep Brain Stimulation which controls the Parkinsons tremor. Two holes are drilled into the skull with a small trench joining them, wires are then put in and fed down to a battery in the chest which tells the Brain to produce Dopamine. My Parkinsons affects the right hand side of my body, my side effects are memory loss at times in that things I would have normally remembered instantly take a little longer to come back. I have balance issues in confined spaces whereby I am likely to fall, I also walk funny, like i'm drunk !! Also, I have a Dystonic tremor which has been with me since I was a teen meaning that where I have to concentrate very hard on doing something I get a little wobble on, eating is a problem as my hands shake especially in the company of strangers, brushing my teeth I use two hands to achieve this and I no longer wet shave due to carving chunks out of my face so use an electric shaver. The medication i'm on is Madopar of which I am on 4 x 250mg per day and this does help me. It is eviident that your husband needs to get off the Requip as soon as possible for your sake as much as his and you should get him an appointment to see his Neurologist to explain the problems you are having. They should be able to help.
I think it is the idea that he is reducing the requip for my benefit that I struggle with - it has reduced his physical well-being and clearly that is not what I would wish. But the delusiona; behaviour is very hard to cope with.
He would not be a candidate for DBS because he has a heart problem and is n anti-coagulants.
My Dad has recently started suffering awful hallucinations and paranoid delusions. They started as bad dreams but then they became more frequent and now he gets them in the day, normally after waking from a nap. He is on slow release Dopamine 3x daily, plus Paroxetine for depression/anxiety. He has now been prescribed Clozepine to help with the delusions. He took it for the first time last night and it knocked him out for the night and most of the morning but then he had a really awful spell of delusions, which lasted the whole afternoon/evening. It’s very distressing - he is very agitated and thinks there are other people in the house. He doesn’t realise he’s talking to my mum and I and thinks we are in the conspiracy. Almost seems to have made it worse :-(
Has anyone else had any experience of Clozepine for hallucinations/delusions? Does it get better? Can it help?
There are such a huge range of different symptoms now, it’s getting so hard to manage.