Diet & exercise

Crimson Cramp, Malibu Mover,  Bloody Parky c'mon divine R your turn.   

Will be using hemp oil for salads and coconut oil for expresso , sorted.  Thanks for documentary advice too, so much evidence based stuff out there. 

I went to the deli counter in sainsburys for black olives and anchovies , was feeling a bit mischievous so asked her "are those inflammatory"  she looked confusèd and replied " i don't think they will burn if you cook them"  bless !!   

 

Must look at the documentaries. It always makes me feel better if I'm doing something constructive to help myself. Teehee hee I thought Zombie cocktail for obvious reasons. Crampopoliton or no MOJOhito.


Diet and exercise are very important in controlling PD but trying to get information is very difficult as it is so contradictory.

I have chronic back ache which makes exercise difficult and I have looked relentlessly for anything that I can do to strengthen my back without exacerbating the muscle stiffness and cramping.

I am 55 and have had PD for 13 years - but still havent found an effective way of keeping fit, keeping my weight down at the same time as caring for my back.  Unfortunately, diets tend to cause constipation which stops the medication working, which means I cannot exercise.  I have tried so many that just dont work.


This is a very interesting post and I will try your suggestions whilst crossing my fingers for a miracle cure.


Thanks for sharing.

 

 

Dear oxford gills

Constipation not nice but you cannot hide away from the fact that this can be a problem.  Have you tried raspberries more fibre than you can shake a stick it.  prune juice very, very, very effective trust me ...if you have off periods this is not the time for a glass of prune juice, you need to be at your optimum fitness levels and preferably in clothing with no fiddly buttons or zips.  

Let us all know how you get on, but perhaps in code like

1. very successfull but had to bring wash day forward.

 

2.  had a good start to the morning, felt lighter.

 

3. vit c useful but thats all.

Divine R love zombie cocktail whats in it ? 

 

 

Oxford Gills: If you haven't already, try drinking a couple of big glasses of water as soon as you wake up, a veggie smoothie (see earlier post) and a cup of strong coffee. Don't stray too far from the WC though!

Sorry to hear about your back. I know that it can be extremely problematic. My attitude with exercise is to do something everyday. That something totally depends on a number of factors, but you will know full well what you can and can't do I'm sure. 

Cheers

 

Hi OxfordGils, Have you tried yoga? Apologies if you have have. It's my saviour both physically and mentally. My husband has had back problems for years and has finally, after much nagging, tried pilates. It's an all male group so no embarrassment. I'm sure you've tried all sorts. It's one of those ailments where it's trial and error. A bit like Pd. Teehee Zombie has loads of rum with a bit of juice. I guess if you use prune juice you'll be you'll be dancing reggae all the way to the loo!

Mark there are lots of people who say eating the right food is essential for PWP , so why don't the doctors/consultants send them to see a dietician ?. 

Billywhiz: I would imagine that it's due to a lack of scientific evidence in relation to any effect that diet has. I can't seen how one could ever really study the effects of diet on PD, because of the huge amount of variables involved as opposed to testing, for example, a pill. 

One can only go with what works for them, and a plant based diet plus daily exercise have been having a positive effect for me. 

 

Hi everyone,

Research suggests that a regular exercise routine can have both physical and mental benefits for people with Parkinson’s. It’s thought that some types of exercise can improve movement, for example some studies show that Tai Chi can help with balance and falls. But there’s also evidence that physical activity can improve activities such as thinking and learning as well as general wellbeing. 

Research in animal models has also suggested that exercise could even helping to protect the nerve cells that are lost in Parkinson’s, meaning that they can survive for longer. But more studies are needed for us to fully understand potential benefits of exercise on the brain.

If you’d like some more information on the benefits of exercise for Parkinson’s - you can find this on our website here. We also recently talked about this topic in our Spring 2016 issue of our research magazine Progress (Page 16-17). 

Unfortunately, not a lot of research has been performed looking into diet and Parkinson’s but having a balanced diet is an important part of looking after your health. You can find some more information about diet and Parkinson’s here.

Best Wishes,
The Research team

It appears that there is plenty of evidence to show that exercise is beneficial in Parkinson's

However this is not considered in local proposals for changes being made in the Government's Sustainability and Transformation plan.

The plan will mean the closure of our local stroke rehabilitation unit which also hosts the Parkinson's team.At present the physiotherapist uses the unit for her assessments and makes use of the equipment for one to one work.We also have 3 exercise classes run by the physio  which have a beneficial mental and physical effect.

The Commissioners say that we want services that are closer to home,of course we will say that if asked! but what will this mean ?Are there appropriate venues ?Will there be access to equipment such as parallel bars etc? Will we have access to a specialised physiotherapist if she is trying to visit so many different venues.

In my view that this plan completely shows a complete misunderstanding of the needs of Parkinson's patients.We are more likely to be subject to falls and hospital admissions and more social isolation.

This is yet another cost cutting exercise in my view which will cost a lot more in the long term.

Are any other members  experiencing similar plans?

 

 

 

 

 

 

 

 

 

 

A lot of PWP can gain weight, with that and fatigue, movement, balance low blood pressure they can find exercise hard. So a diet that can help them and others would be great. Why can't PUK look into this ?

There are some study results around diet, exercise and supplements here:

http://pdgladiators.org/news-from-the-front-key-takeaways-from-the-world-parkinsons-congress-part-i/

The pdf on the page gives a good graphic summary of what the study entailed. 

Interesting to me is that dairy is neutral where PD progression is concerned, as in the past I had read that people with PD should avoid it. 

 

DivineR   rum and beetroot with apple juice, brilliant .a zombie  zzźz...zzzz

Nite you positive people, wheres the other cocktail makers ?  

 

Hi BillyWhizz, 

As the research team said, there is a lot of research in to this area. We are currently working on updating our information and advice around diet and exercise for people with Parkinson's, so watch this space! I'm not sure if you are a member of this group, but there is a fantastic group on Facebook called Start Living Today PD, it's full of exercise enthusiasts and really worth joining if you're interested. 

Kat

 

 

I believe in eating a vegan diet rich in fruits and vegetables, helps in reducing the symptoms of Parkinsons’ disease. I think eating that diet with a proper plan is necessary for seeing results. Due to present conditions, I often order my necessary food from https://sportsinside.co.uk/ The thing that matters most is focusing on a diet plan and a good quality diet.

It is now accepted that exercise is equally important as the meds. I agree that our ability level will be different BUT we can all do some. You just need to find out what you can do and build on it. I use YouTube. There are all sorts of exercises - some specific for PD, others for building upper and/or lower body strength, or those focusing on you abs and glutes (if like me you have osteoarthritis). There is one that helps keep your fingers supple and is specifically for PD. If you can swim that would be fantastic. (I can’t any more - I just go in circles as my left is weak!). As for diet, there are opinions abou the Keto diet. I don’t follow any regime as I have various reaction to particular foods. I use Almond milk for instance as cow’s milk gives me catarrh. I have also reduced intake of meat and usually try and have fish or all vegetarian. I drink prune juice and eat the fruit as well. I eat healthily with lots of fibre and fruit. I keep a vigilant eye on my BMI and weight. Should take Statin but don’t like the idea of injesting more drugs