I welcome Cutiepie's suggestion that the moderators look at rearranging the forum to include a "side effects" thread with a sub-section for OCDs that has a "sticky "on it. I have no idea what this means as a virtually skillfree OAP in computer workings but if this will allow those in fear of damaged behaviour from DAs to find help and information easily without searching through past posts that would be great.
If there was also some way of preventing the destructive posts of the "use willpower and pull yourself together"type it would be even better.
Is there some way we could make this a petition to add weight to the request?
If the Association really means the promise to publicise the issue of OCDs and DAS this is their chance to make a start.Again, my love and support to all those struggling with the effects of DAs and helping others. x
The difference between impulsive behaviour caused by drugs to treat Parkinson's is that once the drug dosage is reduced or stopped, the impulsive behaviour goes away. It is drug induced!
Kyloe
You seem to totally ignore all published evidence about the prevalence of OCDs and DAs.
Can you comment on the Mayo Clinic research specifically?I posted a link for you and a relevant exerpt.
It only documents NEW OCDs appearing in patients on DAs.
They did not suffer from them before.
"What we found was that in as many as 22 percent of patients during that two-year period had a new onset impulse control disorder," she says.
She goes on to give the 1 in 3 on higher doses statistic, also NEW compulsions.
I will try not to post any follow-up to your strange posts which seems to imply we should not raise the issue or seek outside help as we should be happy to pay the price of your improved condition.Challenging your view with articles and figures does not seem to give you any food for thought
No-one ever suggested we wanted a ban on DAs, just steps to prevent this misery overwhelming so many innocent people.
To be told that my husband of almost 50 years should have controlled himself as we fight to survive and not give in to the temptation to end this misery by suicide is hurtful beyond measure.I only hope you are never in the position of knowing this devastion as all you have built up is destroyed.
You seem to totally ignore all published evidence about the prevalence of OCDs and DAs.
Can you comment on the Mayo Clinic research specifically?I posted a link for you and a relevant exerpt.
It only documents NEW OCDs appearing in patients on DAs.
They did not suffer from them before.
"What we found was that in as many as 22 percent of patients during that two-year period had a new onset impulse control disorder," she says.
She goes on to give the 1 in 3 on higher doses statistic, also NEW compulsions.
I will try not to post any follow-up to your strange posts which seems to imply we should not raise the issue or seek outside help as we should be happy to pay the price of your improved condition.Challenging your view with articles and figures does not seem to give you any food for thought
No-one ever suggested we wanted a ban on DAs, just steps to prevent this misery overwhelming so many innocent people.
To be told that my husband of almost 50 years should have controlled himself as we fight to survive and not give in to the temptation to end this misery by suicide is hurtful beyond measure.I only hope you are never in the position of knowing this devastion as all you have built up is destroyed.
hi Kyloe,
Thank you for insight in to the world of OCD.
Thank you for insight in to the world of OCD.
Kyloe, why are you going on and on and on about "ordinary" OCDs? We're not interested in them. We're ONLY interested in OCDs induced by taking DAs - see the title of this thread. I don't know how I can explain this any more clearly.
Hi,
Ordinary OCD,s are extremely relevant.A high percentage figure.How many also hidden,don,t come forward.How many of these people,or pwp already prone to OCD,s take the DA,s and naturally have increased tendencies.Those not prone have a relief of symptoms and are fine.This makes all the statistics continually reeled out to be somewhat false as far as blaming the DA,s is concerned.In other words how many people were to varying degrees already in the grip of OCD before even taking DA,S.
Has a study been done on pre OCD traits of people then going on to DA,s.I remember being asked a number of questions in this area before being prescribed.How many hide the truth when asked by their Neurologist,either through embarrassment,not wanting to admit,or other reasons.Will they then go on to blame the drug when already suffering OCD before going on it.Would this not bump up the percentage figures.
Some have asked where are my statistics,where is my proof.Like i say,i say it as i see it,common sense,and take little notice of churned out figures which in the future prove to be wrong.Talking like politicians instead of focusing on what the true situation is,is wearing thin.The views of those not prone to OCD should be at the forefront of this debate.The perfect solution for study.What makes us different,well are we listened to,obviously not.
All the best
Titan.
Ordinary OCD,s are extremely relevant.A high percentage figure.How many also hidden,don,t come forward.How many of these people,or pwp already prone to OCD,s take the DA,s and naturally have increased tendencies.Those not prone have a relief of symptoms and are fine.This makes all the statistics continually reeled out to be somewhat false as far as blaming the DA,s is concerned.In other words how many people were to varying degrees already in the grip of OCD before even taking DA,S.
Has a study been done on pre OCD traits of people then going on to DA,s.I remember being asked a number of questions in this area before being prescribed.How many hide the truth when asked by their Neurologist,either through embarrassment,not wanting to admit,or other reasons.Will they then go on to blame the drug when already suffering OCD before going on it.Would this not bump up the percentage figures.
Some have asked where are my statistics,where is my proof.Like i say,i say it as i see it,common sense,and take little notice of churned out figures which in the future prove to be wrong.Talking like politicians instead of focusing on what the true situation is,is wearing thin.The views of those not prone to OCD should be at the forefront of this debate.The perfect solution for study.What makes us different,well are we listened to,obviously not.
All the best
Titan.
Such ramblings are utter tosh, and belong in orbit around Saturn, from whence they came.
hi titan
I was just about to switch off my PC when up popped your daily words of wisdom.
Have you ever thought of presenting your wisdom directly to the medical research centres and experts whom you appear to be at complete odds with? You should even consider publishing a book on your views, maybe calling it "the titan theory"?
I'm sure that i speak on behalf of everyone who's lives were or still are being destroyed by drug induced pathological behaviour, when i say thanks for all your support and understanding........
all the best
bluey
I was just about to switch off my PC when up popped your daily words of wisdom.
Have you ever thought of presenting your wisdom directly to the medical research centres and experts whom you appear to be at complete odds with? You should even consider publishing a book on your views, maybe calling it "the titan theory"?
I'm sure that i speak on behalf of everyone who's lives were or still are being destroyed by drug induced pathological behaviour, when i say thanks for all your support and understanding........
all the best
bluey
We need to start another thread called "Cant help taking unsubstantiated mince while on DA's.
Why are they in the forum, we would all be better served if they were given a lab and set to the task of finding cure. Their scientific approach is foolproof. I wonder how many pwp that guess their way through a topic have cured a medical condition. I don't know but I bet its plenty. Common sense. Its the old infitite monkeys with infinite typwriters paper and ink rewriting Shakespear, stands to reason. Too much time on there hands and aren't hampered by facts.
Clinical trials could be fast tracked with the reasoning that "it wasn't the drug, their head was going to turn into a green basketball anyway."
How many mince talkers are on DA's.
These Olypians of minced verbosity could be the missing link in sorting the worlds problems.
Talk enough mince and some of it is bound to be right, evntually.
In the meantime wax lyrical about people and circumstances your not qualified in and run roughshod over their emotions while your at it.
I see what your saying but WHY ARE YOU SAYING IT? Go on, answer one question.
Why are they in the forum, we would all be better served if they were given a lab and set to the task of finding cure. Their scientific approach is foolproof. I wonder how many pwp that guess their way through a topic have cured a medical condition. I don't know but I bet its plenty. Common sense. Its the old infitite monkeys with infinite typwriters paper and ink rewriting Shakespear, stands to reason. Too much time on there hands and aren't hampered by facts.
Clinical trials could be fast tracked with the reasoning that "it wasn't the drug, their head was going to turn into a green basketball anyway."
How many mince talkers are on DA's.
These Olypians of minced verbosity could be the missing link in sorting the worlds problems.
Talk enough mince and some of it is bound to be right, evntually.
In the meantime wax lyrical about people and circumstances your not qualified in and run roughshod over their emotions while your at it.
I see what your saying but WHY ARE YOU SAYING IT? Go on, answer one question.
.
Remember the story from Greek mythology, and the wars between the Olympians and the Titans?
Zeus decides to give up the throne in favour of the infant Dionysus. The Titans decide to slay the child and claim the throne for themselves. They distract Dionysus with toys, then dismember him and boil and roast his limbs. Zeus, enraged, slays the Titans with his thunderbolt, and Athena preserves the heart in a gypsum doll, out of which a new Dionysus is made.
.
Remember the story from Greek mythology, and the wars between the Olympians and the Titans?
Zeus decides to give up the throne in favour of the infant Dionysus. The Titans decide to slay the child and claim the throne for themselves. They distract Dionysus with toys, then dismember him and boil and roast his limbs. Zeus, enraged, slays the Titans with his thunderbolt, and Athena preserves the heart in a gypsum doll, out of which a new Dionysus is made.
.
"Don't cloud the issue with facts!"
- Mary Poppins.
- Mary Poppins.
" Why do you always complicate things that are really quite simple?"
Mary Poppins.
Mary Poppins.
I asked a question on this thread which has been totally ignored.
If you suffered from DA induced compulsive behaviour how did you stop?
Assuming you have no willpower then what actually happened to stop you?
Did the compulsive urges cease immediately?
Did you gamble before DAs for example? Did that stop?
This is relevant to working out how to help people.
Assuming we are interested in helping people?
If you suffered from DA induced compulsive behaviour how did you stop?
Assuming you have no willpower then what actually happened to stop you?
Did the compulsive urges cease immediately?
Did you gamble before DAs for example? Did that stop?
This is relevant to working out how to help people.
Assuming we are interested in helping people?
Willpower does influence,health and that is not saying that you can regain control when in the grip of the adverse mind altering effects of medication.OCDs of any description or severity are relevent here,Ive many theyve been part of my life forever.I love my agonist its given me back my life,I take the maximum dose now and am aware every time I take those pills that I am dancing with the devil.My opinions are mine alone,I listen to others,personally I think some members have got cotton wool in there ears and there opinions have become obsessive to the point of being futile and intolerable.Along with willpower, I have something called positivity,if ray and his footsoldiers swallowed a spoonfull of each then we might help people reather than using bullying repetetive arguements to inflict your personal opinions.What is the goal of this thread and how can we step forward toward it.
I think many people are afraid of telling their story again and again and boring people.
Many of us have posted our full stories on previous threads such as "DAs..should patients be told the truth.
I will post my husband's sad tale again if people are unaware of it and I share what I assume is your feeling that the thread has descended into an onslaught by those who wish to bully sufferers into stopping posting and helping each other.What I can't work out is why?
Many of us have posted our full stories on previous threads such as "DAs..should patients be told the truth.
I will post my husband's sad tale again if people are unaware of it and I share what I assume is your feeling that the thread has descended into an onslaught by those who wish to bully sufferers into stopping posting and helping each other.What I can't work out is why?
Yes golden girl,there are many sad stories and lives are changed forever,I think that your story is sad,and I do feel for you, but it should be used to help others from sufffering if that is in someway possible,but riduculous arguements,with a strong bias on an individual opinion, show no respect or consideration for others,in what is becoming a farcical merry go round.
hi Leyther
Before being prescribed Cabergoline i gambled. My gambling pre cabergoline was only occasional (maybe a couple of times a month) and the most i ever lost in one day was around £80, on a day out at the races.
Within a few months of taking cabergoline i was gambling everyday and would think nothing of losing several thousand pounds in just one day alone.
I was taken off cabergoline cold turkey, however it took several months for the gambling urges to calm down. I think though there was a difference in that, the gambling while on cabergoline was more about thrill seeking than gambling. Whereas during the first few months after i stopped taking cabergoline, the gambling was about chasing the money i had lost, as the reality of what happened hit home.
These days my gambling is limited to £5 on the lotto each week and the odd few quid on big races like the grand national etc.
Before going on to DA's i had no debts, i never gambled more than i could afford. By the end of my time on cabergoline i had debts of circ £350,000 and was declared bankrupt.
In terms of what happened to stop me? Two things, 1) i finally found out about link between DA's and gambling, 2) my uncle has been a Addictions counsellor for over 20 years and he helped me to recover.
I think that answers your questions.
regards
bluey
Before being prescribed Cabergoline i gambled. My gambling pre cabergoline was only occasional (maybe a couple of times a month) and the most i ever lost in one day was around £80, on a day out at the races.
Within a few months of taking cabergoline i was gambling everyday and would think nothing of losing several thousand pounds in just one day alone.
I was taken off cabergoline cold turkey, however it took several months for the gambling urges to calm down. I think though there was a difference in that, the gambling while on cabergoline was more about thrill seeking than gambling. Whereas during the first few months after i stopped taking cabergoline, the gambling was about chasing the money i had lost, as the reality of what happened hit home.
These days my gambling is limited to £5 on the lotto each week and the odd few quid on big races like the grand national etc.
Before going on to DA's i had no debts, i never gambled more than i could afford. By the end of my time on cabergoline i had debts of circ £350,000 and was declared bankrupt.
In terms of what happened to stop me? Two things, 1) i finally found out about link between DA's and gambling, 2) my uncle has been a Addictions counsellor for over 20 years and he helped me to recover.
I think that answers your questions.
regards
bluey
hi purps-slurps,
Would you mind just clarifying your comment regards ray and and his foot soldiers using bullying, also who are these foot soldiers you elude too?
regards
bluey
Would you mind just clarifying your comment regards ray and and his foot soldiers using bullying, also who are these foot soldiers you elude too?
regards
bluey
Morning all.
I'll give Purps-slurps' posts the attention they deserve.
Hi Leyther.
This is not easy.
Even when one is totally and overwhelmingly obsessive one can know something is wrong, even if the cause is unclear.
For example if someone were to find themselves, at 4 o'clock on a Saturday afternoon, holding up the traffic by walking down the centre of the road ripping off and discarding their outer garments to reveal bra, panties, stockings and suspenders (to satisfy cross dressing and exhibitionism cravings - just two of many concurrent "needs"), and they were aware they'd been doing this sort of thing for 7 years, it's likely that they'd realise something was "up".
It IS possible, you know, to be aware that one has PD, and that one is taking Cabergoline for it - a drug which appears to work very well in improving one's mobility - and also be aware that one has severe compulsiveness problems, without having any reason to connect the two.
Personally, whilst still "mad", I was trawling the 'net for PD information when I stumbled across a load of stuff about gambling and hypersexuality. I showed my (2nd) wife, and Eureka! We headed for the PD clinic, where we argued a lot with the "experts", and then stopped the Cabergoline immediately. Within a few days EVERYTHING was back to normal, including my gambling - about twice a year.
Anyone want to buy any size 12 stilettos?
Ray.
I'll give Purps-slurps' posts the attention they deserve.
Hi Leyther.
This is not easy.
Even when one is totally and overwhelmingly obsessive one can know something is wrong, even if the cause is unclear.
For example if someone were to find themselves, at 4 o'clock on a Saturday afternoon, holding up the traffic by walking down the centre of the road ripping off and discarding their outer garments to reveal bra, panties, stockings and suspenders (to satisfy cross dressing and exhibitionism cravings - just two of many concurrent "needs"), and they were aware they'd been doing this sort of thing for 7 years, it's likely that they'd realise something was "up".
It IS possible, you know, to be aware that one has PD, and that one is taking Cabergoline for it - a drug which appears to work very well in improving one's mobility - and also be aware that one has severe compulsiveness problems, without having any reason to connect the two.
Personally, whilst still "mad", I was trawling the 'net for PD information when I stumbled across a load of stuff about gambling and hypersexuality. I showed my (2nd) wife, and Eureka! We headed for the PD clinic, where we argued a lot with the "experts", and then stopped the Cabergoline immediately. Within a few days EVERYTHING was back to normal, including my gambling - about twice a year.
Anyone want to buy any size 12 stilettos?
Ray.
Thanks for that Bluey
It is interesting that you mention the thrill seeking as being the driver for your gambling on the DAs. From my experience and from talking to others it seems to be the indicator as to what may be deemed normal behaviour (ie like to put a bet) on and compulsive behaviour.
It is the same with hypersexuality, its more to do with the thrill of doing something you arent supposed to that is the driver. But there is also the obsessional side which makes you sit at a computer 18 hours a day too.
Where you cognisant of your behaviour being "wrong" before you knew about the DA influence. When you realised that the problem was with the DAs how did you react? Did you want to stop? How did you manage to raise the problem with your neuro?
Sorry to hit you with all these questions.
I will post my experiences as a comparison.
Anyone out there who didnt gamble before DAs? How were you affected? How did you stop? Did the compulsive behaviour go away immediately when you did?
It is interesting that you mention the thrill seeking as being the driver for your gambling on the DAs. From my experience and from talking to others it seems to be the indicator as to what may be deemed normal behaviour (ie like to put a bet) on and compulsive behaviour.
It is the same with hypersexuality, its more to do with the thrill of doing something you arent supposed to that is the driver. But there is also the obsessional side which makes you sit at a computer 18 hours a day too.
Where you cognisant of your behaviour being "wrong" before you knew about the DA influence. When you realised that the problem was with the DAs how did you react? Did you want to stop? How did you manage to raise the problem with your neuro?
Sorry to hit you with all these questions.
I will post my experiences as a comparison.
Anyone out there who didnt gamble before DAs? How were you affected? How did you stop? Did the compulsive behaviour go away immediately when you did?