DAs have lots of OCD side effects, Dot, one of which is punding. This is repetitively doing the same thing over and over again, pointlessly. It could be anything - stacking coins, tidying the sock drawer or obsessively cleaning the loo every 2 minutes. In your case being "glued" to the PC was your "area of obsession".
This is quite common, and probably not surprising, as a lot of PwP are housebound, and the PC is their only portal to the world outside.
I take your point Dotty. I have been aware that I am using my PC far more often, especially at night. However, I don't think I am addicted. My PC is in situ in the study & I don't know how to copy & paste.
My "local" hospital is about 10 miles away There used to be 2 neuros, now only 1 who deals only with current patients & those on the waiting list. ie no new referals. Thank you so much for your replys
My "local" hospital is about 10 miles away There used to be 2 neuros, now only 1 who deals only with current patients & those on the waiting list. ie no new referals. Thank you so much for your replys
oops, nearly missed your post Ray. I have heard of punding, but deliberately avoided finding out about it. I just simply do not like the term.
Hello Annebernadette. When I first sought medical advice regarding my shakes ect I was offered an appointment with the NHS ten months ahead. I knew that I couldn't wait that long so went privately to see a neuro. I was seen within a week and actually saw the same neuro that my NHS appointment should have been with. He dx me in his office that day and I saw him about three times privately. I then told him I couldn't afford to continue being a private patient and he put me on his NHS list. So effectively I by passed the ten month wait.
I've also just changed my neuro because he turned out to be a plank too. When I went to him and told him how Ropinerole was effecting me, initially he said 'perhaps I've wrongly diagnosed you!!'He then sent me to see a psychiatrist, who of course found nothing wrong with me cos by then my neuro and taken me off the DA's.
There really are some ar......s out there practising as doctors.
I certainly would change my neuro if he made a comment like that.
good luck in your search
regards
Glenchass
I've also just changed my neuro because he turned out to be a plank too. When I went to him and told him how Ropinerole was effecting me, initially he said 'perhaps I've wrongly diagnosed you!!'He then sent me to see a psychiatrist, who of course found nothing wrong with me cos by then my neuro and taken me off the DA's.
There really are some ar......s out there practising as doctors.
I certainly would change my neuro if he made a comment like that.
good luck in your search
regards
Glenchass
Neurology/neurosurgery are very wide-ranging and complex specialties, and involve quite a lot of conclusion-drawing, symptom-evaluation and behaviour-assessment. Many "experts" will come up with different answers to the same observations and indicators, and prescribe totally different solutions. Particularly as each will have their own opinion as to the effects and side-effects of any specific drug.
In addition, like all of us, practitioners have their own personalities and foibles, and some can be pompous, irritating and often deaf. And just because someone is qualified to call themselves a "Consultant Neurologist" doesn't mean they specialise in PD, or even in movement disorders generally.
I strongly believe that many of us PwP, often with decades of first-hand experience and sometimes plenty of time for research, know much more about our specific subject than the consultants we're sent to see. The latter (including spacialist nurses) have too little time for patients, research and keeping up with progress.
In addition, like all of us, practitioners have their own personalities and foibles, and some can be pompous, irritating and often deaf. And just because someone is qualified to call themselves a "Consultant Neurologist" doesn't mean they specialise in PD, or even in movement disorders generally.
I strongly believe that many of us PwP, often with decades of first-hand experience and sometimes plenty of time for research, know much more about our specific subject than the consultants we're sent to see. The latter (including spacialist nurses) have too little time for patients, research and keeping up with progress.
p.s.
I'm still at loggerheads with my GP about my request to be transferred to a different consultant. I've told the GP all my reasons, but I think he'll find it embarassing to make the request, and probably thinks I'm a nuisance.
Tough, I won't give up!
I'm still at loggerheads with my GP about my request to be transferred to a different consultant. I've told the GP all my reasons, but I think he'll find it embarassing to make the request, and probably thinks I'm a nuisance.
Tough, I won't give up!
3rd time of trying to post this. Maybe I should learn my lesson. GP's are referal agencies & signers of prescriptions. Also some of my best friends. Nothing to be frightened of. They value their salaries & social standing far above your nuisance value
Hi guy's, ray why on earth is your GP refusing to make a referral elsewhere for you? I thought it was your right to change if you are not happy with 'the service'. Mine was fine about doing it for me and I actually saw the new one before my appointment for Mr plank was due. I guess with the government cuts things will only get worse from now on. I've just read a where a patient is unable to get their meds because they are too expensive. It really is a bad situation. Imagine if we were all starved of our meds, we would be roaming the streets like shaky zombies for sure!!
It is a pain in the proverbial that the decision makers who are about to violate our lives by making even more financial cuts probably wont even be effected by 'em.
Perhaps we need to infiltrate the Congress with our banners ect!!!
Glenchass
It is a pain in the proverbial that the decision makers who are about to violate our lives by making even more financial cuts probably wont even be effected by 'em.
Perhaps we need to infiltrate the Congress with our banners ect!!!
Glenchass
He's not actually refusing, just trying to dissuade me. I reckon they're golfing mates or something, and he's afraid such a move implies criticism.
Not all side effects are as drastic as those mentioned on this thread. My mum was on mirapexin and was indeed briefly warned about hallucinations. But not the extent, we thought it meant seeing a few pink blobs dancing around, not full scale paranoia and dementia-like symptoms.
Like, I'd come home and she'd be talking about how people had broken in to the house. I'd be on the verge of calling the police, then realise she was nuts. 'Do you see that woman there?' she ask, pointing to an empty chair. This also coincided with a painkiller, codine, prescribed for her leg pain - turned out she's broken her hip but it had gone undiagnosed - oh the joys of our wonderful medics! - and that had interferred too. Actually I think that was the main cause then, but she went nuts two years later too and that was was purely mirapexin and yes, it would have been nice to have some warning. Once she was off it, it stopped.
Like, I'd come home and she'd be talking about how people had broken in to the house. I'd be on the verge of calling the police, then realise she was nuts. 'Do you see that woman there?' she ask, pointing to an empty chair. This also coincided with a painkiller, codine, prescribed for her leg pain - turned out she's broken her hip but it had gone undiagnosed - oh the joys of our wonderful medics! - and that had interferred too. Actually I think that was the main cause then, but she went nuts two years later too and that was was purely mirapexin and yes, it would have been nice to have some warning. Once she was off it, it stopped.
on da,s and i think confusion and remembering things are starting to effect me.i know the dangers of these drugs thats why i came of the mirpexin for behavoiur probelms but on requip and my mind is not quite working right,god!!i hate this!!!
.
DOPAMINE AGONISTS
There was a young neuro named Ming
Who thought that DAs were the thing.
For seven long years
He reduced me to tears
And smiled as I lost everything.
As I turned from a sane man to mad
I became so incredibly bad.
With awful obsessions
I lost my possessions
And my offspring stopped calling me Dad.
.
DOPAMINE AGONISTS
There was a young neuro named Ming
Who thought that DAs were the thing.
For seven long years
He reduced me to tears
And smiled as I lost everything.
As I turned from a sane man to mad
I became so incredibly bad.
With awful obsessions
I lost my possessions
And my offspring stopped calling me Dad.
.
Would you believe my neuro is called Mr Chow, no sorry Chong
hello ,I have been through hell and back trying to curb the terrible urge to gamble.
My husband is at his almost at his wits end with wondering how much I spend.
So now after 10 years+ I am going to change my medication from oral to patches.
I wondered if anyone on forum had tried this form of meds. My parkinsons nurse suggest I give them a try.
My husband is at his almost at his wits end with wondering how much I spend.
So now after 10 years+ I am going to change my medication from oral to patches.
I wondered if anyone on forum had tried this form of meds. My parkinsons nurse suggest I give them a try.
.
How are the patches going Patricia?
Any improvement?
Ray.
.
How are the patches going Patricia?
Any improvement?
Ray.
.
The sudden urge to smoke which i have not done for years ,could it be related to increase of dopamine agonists,?could even a low dose have this affect?im on rolpineole increase to 2mgx3daily
I'm told that any addiction you've had in the past - whether due to DAs or not - can come back in an instant under even a very small subsequent DA dose. So this COULD be the cause.
However I'm sure there are many other possible triggers. Perhaps you're going through a particularly stressful period at the moment? Perhaps you subconsciously associate smoking with happier times?
Worth discussing with the doc I'd say.
However I'm sure there are many other possible triggers. Perhaps you're going through a particularly stressful period at the moment? Perhaps you subconsciously associate smoking with happier times?
Worth discussing with the doc I'd say.
Evening Ray,
been under alot of stress lately,so you are right .other factors could be at play.
been under alot of stress lately,so you are right .other factors could be at play.
Life is never straightforward, is it? 
Is Titan gambling too much? Is he on DAs?