So nice to hear from you, so sorry for the delay in replying…
It’s very understandable that you’re feeling less positive given that you’ll be seeing the consultant very soon to discuss the whole situation. You must remember, you have come a long way in this time, and the results don’t lie! If these meds need to continue in order to afford you the best quality of life, then sobeit. You’ve also been very positive about the improvements… whatever happens at that appointment, whatever the ‘official’ outcome, I am sure they will continue to support you in making sure you get the best meds. You’ll be absolutely fine… keep adopting that positive attitude and continue to feel as well as you can be!
As for me, well, the good news is, the levodopa has definitely helped the general movement issues, and the right hand shake and continues to do so. It initially helped my curling toe problem, internal shake and stiffness in my upper body - but these symptoms are now back. I get tired quickly. But my biggest issue is sleep (waking during night) and associated, horrendous dreams, mostly death-related, or extremely negative. They prescribed a small dose of clonazepam, a sedative, but it doesn’t seem to be working. The trouble is, the day following these dreams is awful and I cry most of the day and feel particularly low. Not nice.
The good news is, I’m due to see my neurologist on the 23rd so at least we can review and amend! My physio therapist is amazing, she’s started me on the PD Warrior regime now and I’m walking my dog every day.
Slowly but surely.
Currently reading the Michael J Fox biography…very entertaining and postive. He writes so well. It’s a good distraction!
Please let me know how you’re getting on.
Very best wishes