Hi again everybody
Posted about dyskinesia April this year and it continues to drive me nuts. I currently take stalevo 125 at about 0730, 1000, 1245, 1545 and 1845. In addition I take Requip XL Ropinirole 6mg at 0730 and 4mg at 1845. I also now take 2 x 0.5 mg Clonazepam at 2100. Sleep is very poor and usually no more than 3 hours in one continuous bout.
But the dyskinesia gets worse, particularly at lunch and dinner times..I think the motion of the jaws sets off 'sympathetic' body motion. My 'specialist' had never heard of this (but he's actually an MS specialist)
Saw the specialist yesterday and he now wants me to add Selegiline 5mg at midday to the drugs cocktail.
He's a very nice chap, but I've very little confidence left in experimentation, seems to be a matter of guesswork. But I'll have to do something as my 'window' of movement without dyskinesia is getting smaller and smaller. I'm tired of turning heads in restaurants! I feel like getting a t-shirt with "YES - ITS PARKINSONS,STUPID!" written across the front. I content myself with wearing my Muhammad Ali t-shirt at the gym! I can still do 30 mins 3 times each week, but now I just walk.
Any ideas on my dosages would be really,really appreciated especially the addition of Selegiline. I dont want this thing to beat me just yet - I know it will eventually.