Early Days

Hello Jenga
Very pleased to hear you are feeling a more yourself today and I am sure that lovely and positive post from Folkmusician must have gone a long way to ease the torment you were facing - although you face your own challenges with Parkinson’s, I suspect your bigger concern was over your son’s long term future so Folkmusicians post was very timely.
Regarding being given ’ advice and try this and that’ I have come to the conclusion that it is part and parcel of having Parkinson’s. These days some years on from diagnosis, it tends to happen periodically usually when something has been on the television or made a splash in some other form of media coverage. If I’ve been told once I’ve been told a dozen times I should try tango :dancer: dancing. I’ve never been interested in tango dancing and I always get intrigued that folk assume I must be now because it’s been shown to help with movement etc in people with Parkinson’s. Whilst I don’t doubt that it’s not for me and actually there are equivalent activities that will have the same result. It can drive me mad at times. I try to remember that people have my best interests at heart but at the same time I feel I have to be honest in my responses because it is important to me that my approach to my Parkinson’s is accepted and adopted 'by others. In a nutshell that is I don’t want it front and centre, the main subject of conversation the whole time. So I say as kindly as I can, thanks but no thanks or I will look at that when the times right but at the moment I’m ok with my meds - something along those lines - and not let it wind me up too much. Sorry I can’t say do this and it and it solves the problem but I’m sure you will find a way to manage this as your own approach to your Parkinson’s becomes clearer.

I thought maybe both you and Folkmusician may be interested in this which I posted a little while ago in a reply to a different post. It was written some years ago now for my friend who has a son living with autism.

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