Following on from my August 20205 comment, I have at last found a satisfactory (for me) solution, following a week exhausted by not sleeping at all! My consultant prescribed ‘Madopar’ 50mg taken after dissolving in water as I go to bed. Personally I tackle Wordle and Quordle laptop word games (language is my subject) at midnight, take my concoction of sleeping pills (including Clonazepam) at around 1am (admittedly with the dose of whisky), and at 1.30am take the Madopar. I sleep within moments of hitting the pillow, usually through to 8/8.30ish. Heaven compared to the old days, with night pain and restlessness disappearing. Incidentally the same consultant advised me to drop Mirtazapine as it was causing ghastly nightmares. We are each individual and respond differently to medications, but I felt this consultant had found my miracle insomnia cure! Worth exploration?
Hi, @PoetryK.
Thank you so much for coming back to share this - it’s really helpful to hear what’s made a difference for you, especially after such a tough time with sleep. It sounds like you’ve finally had a bit of relief, which must feel huge.
You’re so right that everyone responds differently to medication, but posts like this can really help others feel less alone and give them something to discuss with their own specialist.
And it’s lovely to hear you’ve kept your word games and poetry going through it all too!
Take care ![]()
Parkinson’s UK Moderation Team
Thank you. Poetry is probably my best medication, though I understand it seems too sophisticated/inaccessible for most - and the fact that it rarely rhymes fails to fulfill the expectations of many. But again, individuals must find best solutions for themselves! Even if none/few read it, I find that posting it (i.e. perhaps one in a hundred that I write/are published), gives me a sense of completion.
Have you tried consulting a sleep specialist? Sleep specialists can offer personalized insights and might suggest therapy options like cognitive behavioral therapy for insomnia. It’s worth exploring.
My father also struggled with insomnia due to Parkinson’s. We found that tweaking his treatment plan helped a lot. Have you looked into how you store any medical cannabis products he might be using? Proper medical cannabis storage can actually make a difference in how effective it is. It’s worth checking out. Also, consider consulting with specialists who might have newer insights or alternative therapies.
I think your comment on how ‘ we are all individuals’ and respond differently to the meds is spot on. My hwp has terrible restless nights, even after prescribed quetiapine, all it’s done has hightend his sedation and increased the dream scales. He has become very difficult to care for overnight as he is so unsteady on his feet but insists on getting up so frequently. Half the time he doesn’t even know why. I think it’s just this condition. We are trying all the usual things to aid sleep( not alcohol ). But general medication changes for pd symptoms have made life very difficult.