Hi all, My OH was diagnosed 12months ago, he has finally got his meds on the straight and narrow. He has done so well and is back to his self but with more energy than ever, he has lost his tremor, which was very obvious, its amazing what his Neuro has done for him. On his diagnosis his Neuro said he would have him back to 95% and he has not failed. We have to see now what the wearing off period might be?? the Neuro said it could be 2 months or 4months or 2 years?????? it all depends on how aggressive the PD is.
I am just hoping it does not start wearing off for a very very very long time, before he has to have his meds added to again. He is now on 6mg Neuro patches one a day, 4 x stavelo a day and one azilect at night.
When the Neuro first diagnosed my OH he told him that he would give him about 10 years?????? We just decided to get on with it and take one day at a time. Today the Neuro said he was extremely happy with my OH and we need to see now what the wearing off period is?which I have already mentioned,but when he said make the very best of the next five years go travel and do all you want to do in life, i felt as if this was bad news, I've felt down since this. Maybe its best to say it as it is and not build up people with PD hopes, what do you think?? love hols x