Getting a Diagnosis

Thanks Steve

We haven’t been given access to a Parkinson’s nurse yet and the pharmacist says it’s up to us to check the medication amounts so I’m going to contact our GP surgery.

Thanks again

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Dosage

If you’ve been prescribed co-careldopa, you’ll usually start with a low dose. Your doctor or specialist nurse will increase your dose gradually until your symptoms are under control. It’s best to take the lowest dose that controls your symptoms. This helps reduce your chance of side effects.

You can always phone the helpline here at Parkinson’s UK & speak to one of their excellent Parkinson’s Nurse’s it is free. Usually you phone the helpline & they phone you back.

The number is 0808 800 0303

Best wishes
Steve2

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Hello. I’ve just been reading your posts. My heart goes out you you both. I do hope your neurologist didn’t actually say, “You’ll have to suck it and see”!

On freezing, which I’ve experienced recently, I understand it helps some people to gently rock from side to side, and/or begin saying a ‘1-2-1-2’ marching order to yourself, out loud or in your mind; this rhythmical approach can trigger a response in the part of the brain that controls movement. There is information on this on the Parkinson’s UK website. I’ve found it is important that no one panics.

Hi Mynanny, nausea is a side effect of most Parkinson’s medications. I get it every time my doses change. It usually settles over the first week or so(for me). 2 tablets three times a day isn’t a very big dose. Normally, as Steve says, it starts lower and builds up but your husband already has a lot of symptoms which I assume is why the Neurologist has started a little higher. They are all very experienced so I would follow the advice you’ve been given.

I hope things improve
Podd

Thank you this is helpful. I do try to read as much as I can from the Parkinson’s website but there’s a lot and I only have so much time but I’ve found it really useful. More useful though have been the very kind people on this forum who have a lot of experience and have helped a lot.

Hi Steve
Apparently the pharmacist read the prescription wrong and prescribed 2 tablets 3 times a day but on checking with the Neurologist it was only 1 tablet 3 times a day. Relieved we got it sorted and his nausea has gone. It early days so not much change yet but fingers crossed. We were originally told Neurologist would see him again early January but his appointment has come and he’s not seeing him until 1st April. So he’ll be on 1 tablet 3 times a day until then but hopefully it may help with the freezing a little. Thanks for your help it made us query the dosage.