Hi all
yes problems with my right shoulder diagnosed as rota cuff injury and give phisio which has not worked I now also have pain in my left shoulder. Not on any meds yet do they help to take this pain away ?
Tom
Hi all
yes problems with my right shoulder diagnosed as rota cuff injury and give phisio which has not worked I now also have pain in my left shoulder. Not on any meds yet do they help to take this pain away ?
Tom
narproxen may well help worth asking dr about xx
I was also diagnosed with a rotor cuff injury - GP told me it was something that happened for no reason (!) and would heal on its own, but could take 18 months or so. I've had six or seven physio sessions which have made no difference to the pain.
I was offered Naproxen but didn't try it because I'd heard it can have serious side effects for some people.
i was ok on them pain was so bad i would not have coped otherwise and now i have same problem in right shoulder xx dont suffer in silence xx
I had another physio treatment this morning. My physio seems to think the pain in my neck is from bad posture. She knows about my PD diagnosis so this felt really frustrating.
The pain is worse - as is the rotor cuff pain in my shoulder (which is probably connected) so I don't think I'll bother going back.
I found neither steroid injections or physio made any difference and in the end the right shoulder completely froze up. I had an MUA (manipulation under anaesthetic ) in 2009 which has given me back approx 80% of movement. My PD consultant agrees that the Parkinsons definitely targets already weak areas,in my case Right shoulder, neck and Sacroilliac. I religiously make sure that i do all my exercises under a warm shower every morning, heaven! then i can move more freely.
I started with stiffness and pain in right shoulder that I thought was from overdoing it bowling to my teenage son in the cricket nets. Physio did not really help but after diagnosis of PD when I developed tremor in the hand and started treatment it resolved. It"s been a year now and no recurrence.
I started with pain in my right shoulder and slowness down right arm and hand. Right hand is still slow to respond and I cannot pick things up easily. Also, I don't swing my arm anymore.
I can cut a hedge with shears quite easily and quickly, but ask me to cut an onion up and it takes me forever! I find that if I tie a bandage fairly tightly, round my right arm, I have better movement and speed. The physio made me do a test, putting pegs into holes and timing me. I performed the task much quicker with the tourniquet on my arm. I often put one on when I get frustrated at not being able to do things quickly with my right arm,
As for the stress aspect, the Chinese believe that STRESS and particularly lack of deep SLEEP, can be the CAUSE of PD and not the RESULT of having the disease. Interesting thought. I have always been quite a stressful person who hides it very well, (probably causing even more stress!).
I read a lot about alternative herbal ways of dealing with PD and at the moment I am weaning myself off Ropinirole XL, under my consultant's suggestion, to see how I get on. After reading some cautionary stories on this Forum, I am not expecting a 'smooth ride'. I'm considering taking natural L-dopa in the form of Mucuna Pruriens, to compensate.
Has anyone been down this route?
Hi Twinks (what a cute avatar!). I'm trying the alternative route too - acupuncture and Chinese herbal medicine. My acupuncturist told me that the Chinese don't have a name for PD - they see the collection of symptoms in a different way and as a sign that the body is out of balance.
So far, however, not much improvement - I've had four or five acupuncture treatments and have been taking the herbs for a week (you can tell I'm not patient by nature!) but I'm going to persevere. My view is that I didn't get PD in a few days so I'm not going to get rid of it in a few days.
I'd be interested to hear how you get on.
Hi yes! I am not sure still how this Q&A system really works, if honest I was just coming on to ask anyone for advice or just comments on if they have suffered really bad hot flushes, that come on suddenly. Also like a really hot sensation one side of your head? But then I noticed the comments about shoulder injuries before being dx with pd. How odd I thought, because yes, about 7 or 8 years ago now I was cutting a hedge & suddenly my arm just shook or trembled something awful. I went white, felt sick & thank god my neighbours son was around to help me. I left it thinking it was just me over doing it. Later I noticed problems so went to the Gp. I had x rays etc. after 2years I had surgery they said I had 5 tears in my shoulder. Now i've been dx with pd that is my weakest spot my right shoulder & arm. In fact i've been working on it lately exercising it to build it up & i'm wondering if i've over done it as today my goodness do I feel rough. Hence me posting on here now to ask your advice!
Does anyone suffer with keep getting really sudden hot terrible flushes? I have had them for a long while 7 they seem to be getting worse. Today has been the first day I have noticed more pd symptons then before, whether i've over done it & i'm tired or what the cause I don't know, but I woke feeling fine, was going to do so much, then I felt giddy, then tremors through my body. I have had a muzzy head alday, & small tremors in my arms. I have been in pjs since 5pm & am just about to get some soup, I have felt that uneasy & scared of moving around too much if honest, just incase I fall. My balance hasn't seemed so steady! As said this morning I was fine, I could even walk a straight line, as I was doing exercises & arm workouts with a resistance band. Have I done too much? Does pd kick off more if you over do things or if your stressed.
My brother is coming out of hospital today after 12days in there, so that & other things going on in the family I have been very stressed! I'm just praying this is a one off bad day, & not pd progressing!!
I am sorry to rant on & also be rambling on too, that's the other thing i've noticed today, my mind is racing & when I was talking to my dr receptionist early I was all over the place, losing what I was saying, then talking to quick! Goodness i've felt ive lost the plot today!! Lets hope tomorrow will be better.
Thank you anyone whose had the time to read this. x
Hi Tabbycat,
Pleased to hear from someone else trying alternative methods. I see a chiropractor every 3 months to relieve back and shoulder pain and she uses acupuncture needles in my lower spine. Seems to help.
You probably need to be on the herbal tablets a bit longer, as you say, to see if they help. I haven't got mine yet, but will let you know if I get any benefit from them, when I do.
As for my avatar.....I found this kitten when he was 3 days old. His mother was feral and she left him in one of my chicken's nesting boxes!! We hand reared him and he is now a beautiful long haired tabby. My friend has adopted him, as we have a Patterdale terrier who hates cats......but I still go and see him (the cat that is!).
Aw, that's such a sweet story about the kitten!
I was wondering whether it might be useful to have a separate section on this forum for alternative therapies since lots of us are using them.
PD symptons are made worse by stress or overdoing things xx
I would be very. interested to hear how people are coping with alternative therapies. How would we go about setting up a special group, so we could compare notes on a regular basis?
Autmnleaves: I've just read your post about hot flushes. I get them too, usually when I'm stressed suddenly. I also have trouble cooling down if I'm in a hot room. It makes me feel a bit claustraphobic.
Is there no end to PD symptoms?
Hi Tom,
I developed a "bad shoulder" with pain in my upper arm whilst waiting for PD diagnosis. After dx I assumed that the shoulder problem was a PD symptom and I requested a referral to a physiotherapist specialising in neurological problems. At the first session she diagnosed rotator cuff damage rather than a PD symptom.
So far I have had 2 ultrasound treatments out of a course of 6 (2 per week). I haven't noticed any improvement yet other than if I wrap my arm in cotton wool and do not move it. Then the pain settles down. Apart from being generally impractical, I am worried that resting it too much will cause rigidity problems. It also seems to produce additional neck pain. Very fine balancing act.
I am newly diagnosed and have been recommended Sinemet by my neurologist but have opted to avoid taking this or any other drugs for as long as I can. After what I've read in this forum I am now also wondering whether I would obtain shoulder pain relief from PD drugs.
Do let me know if you receive any feedback.
Jeanne
i had frozen left shoulder prior to dx, still gets sore now.
you can get pain relief from anti inflammatory's called narproxen.
hope this helps xx bb
i was given Narproxen for pain relief and told the moment i had heartburn too stop, which was the first two pills.