I have lived with Parkinson’s for 14/15 years whilst it was OK at the start ,like any relationship, the honeymoon period is well and truly over.
The jokes about my tremor have been exhausted and ‘P’ is not helping at all with the chores. He has become nothing more than an annoying tenant.
My pet hate is when people talk to me like I am one of their five a day, but generally find humour in most situations. It does get tougher and I struggle some days and whilst it sounds really BAD I need to know other people are at times, miserable and struggling to cope, it takes the pressure off of having to feel you need to be positive all the time
Yesterday started out great until PD suddenly reared its head. I suppose I’ve been hanging on by a thread emotionally and not realising how frayed it was becoming and I broke down upset at work. It did feel good to have a good cry, wasn’t the most convenient place though and definitely not the best time either. I did pick myself up (emotionally) finished work, went home and got myself together. Headed back to work in the evening to watch the VE Day commemoration, which was great. I feel better today though.
I hope you find this forum to be a great place to get help, have a rant and socialise with others who know how you’re feeling.
Hia Trem, welcome to the forum. Just catching up on some reading and posts, I haven’t been on in a while. Like @Hannah replied, a safe space to rant and share! I can appreciate it does get tougher and there are going to be bad days. I think I came to a point a while ago, to just accept this, no point in wasting energy on negative situations, things I don’t want to do, places I don’t want to go. It takes the pressure of me and whilst this may come across as selfish, I know I’m doing it for my own well being. We all have days where we are struggling to cope and am frequently reminded by others around me who are not as fortunate. I can understand what you’re saying, and have been in same spot as Hannah, the tears come and they didn’t stop, I didn’t go out for a few weeks, the more I tried to give myself a kick up the rear, the frustration kicked in, I got more upset. Eventually, I accepted that there are going to be times when I feel like this and I think it’s important to remember it’s okay to feel like this and not put pressure on myself. I found some support through on line courses including dealing with a long term health condition, positive thinking, journalling and mindfulness. I know this won’t be everyone’s cup of tea, but think if you can find something that works for you it may help. I’m now going to try and look as some short breaks in the Cotswolds or the Peak District whilst the sunshine is out!
