Hello and think i have gone post crazy this week and hope not too annoying. Imagine how my wife feels she cannot escape, she has tried quite a few times but technology is on my side in locating her whereabouts (her mums and thanks for tip off Christine).
I do take condition seriously but also feel that humour and trying to be as positive as possible helps me. Obviously the meds are vital but feel that you need to enjoy something as will help give strength to go on as normally as possible. Im not saying this as a Sunday sufferer as had times where wanted to give up due to joint and muscle pains, getting words mixed, stiffness, shaking, drooling any where any time, slow movement, waiting till i could walk after getting out of car which i now an automatic, trying to make sure i walk upright, fight against leaning to left, tiredness, lack of sleep, speech, fingers locking, sore feet and the little niggles. 13 years i have been with this but for all the things going on there is still loads i can do. Apologies for going off on a rant but so many people think i dont have if bad as dont walk round bèen miserable and not showing all ailments constantly. My energy is spent fighting it to live best i can which considering is great and so many have far worse at younger ages. For each health issue i have there is a positive i can find in life. Think i needed it off my chest and funny that the biggest doom and gloom merchants are the ones who dont have it.
Im not posting for any other reason than that this is a place where i can say and people relate to and can say without worrying family more than they are. Hope this makes sense as a bit late and need beauty sleep which i know you wont believe.