Me again, after another event ending in hospital care, police being involved as hubby became aggressive, threatening and saying awful things yo me, I insisted I couldn’t cope any more, he asked to come home, how could I refuse it is his home and I don’t have P.O.A which he gave to his daughter who turned her back three years ago, along with her sister who is executor of his Will. Now we are back on slippery slope as his behaviour wanes again from rational to completely irrational. Please excuse my moans but no where else to share my frustrations and sadness. My family - who are not his, have run out of patience saying I should leave,easier said than done, especially with Covid around and I’m still recovering from extremely bad pneumonia, have T2 diabetes and CKD !
Hello, sometimes I think carers suffer almost as much as PD sufferer. Don’t get me wrong it is a terrible disease, but mercifully for him it doesn’t seem to trouble him, but the constant fallout is pretty tough. My husband dxd around 15 years and our ups and downs could fill a text book! I have made many, I’m sorry to say, moans on here but at minimum it is a place to share frustrations. Hubby has, constant bedtime hallucinations saying he can hear people walking around and talking and has accused me of having people in my room. Sometimes he accepts they are imaginary. But for me, it is his cognitive functions that make life hard - some days he is totally rational, but more often these days his rationale has gone. Today I got up to find he has broken the microwave by overhearing a croissant and not using a plate, he has taken my washing out of machine absolutely wringing wet and left on floor, putting his washing in, despite the thousand times I’ve pleaded with him not to touch my washing. Now he has dirty washing strewn over the hall, he is constantly messing around in the kitchen, moving things around. I’ve shut myself in my bedroom as it is the only place I can keep control over, away from his manias, he is a collector of wires USB cords and plugs, he has probably a hundred or more collected over years in all kinds of drawers in his bedroom and our living room, yesterday he had them all over the place on the floor, this is a regular occurrence I have no idea why. Three mobiles only uses one but plugs them all in to charge constantly. Two lack Alexas, always charging but never using. His laptop is in complete disarray as he constantly meddles with it and, my son in law sorted it once, but he has tangled it up again, I got so tired of him spending hours trying to access his bank and cursing the machine, turning off and blaming WiFi which is running perfectly, that I bought him a new tablet and set it up for him just a month ago, he rarely uses it though still spending hours on laptop when I look at it, there is nothing of any sense on the screen. Today even his speech is nonsensical, this sounds unkind but it is true. Actually, I think he’s forgotten me as he usually checks me out if missing more than a few minutes, but not today, dreading opening door to see what he’s been doing. As I say excuse my rant, my only form of coping, as yet again I think of my way back to normality. I wonder how much of this is attributed to PK or meds, of if he is just plain .