Hi Lar,
Just watched the video re PAM. Very interesting. There doesn’t seem to be a programme here in the UK.
I wouldn’t know how to use the Nicotene patches along with the current medication. Not for self-medication I think, though very tempting to try and get the brain to produce new dopamine cells!!
We’ll keep an eye out for new developments here.
We also heard of a cancer drug recently approved by the FDA in the USA, which is working well to stop the progression of Parkinson’s.
Lots of good news… hopefully we can start to use these and save a lot of distress!
Thanks for your post.
I am of the opinion that using a nicotine patch 2 days a week on alternate days wont hurt you at 7 mg . Discuss with PD nurse or neurologist. The hard part would be to get the hormone treatment as a adjunct .
The chemistry science as he explains and the supporting EEGs convinces me he is onto something. I will use a nicotine patch as described as it can help the neurological condition I believe. When I see the neurologist next year I may discuss the hormone treatment or I may ask the doctor?
Thank you for your feedback very encouraging.
Hi Lar,
The problem I see is that if the Nicotene patches work and start producing dopamine cells - how soon would you notice the effect? And also would one have to then reduce the L-Dopa used? How much would one reduce? All these questions make me hesitant to go ahead and get some Nicotine patches for my husband. If there were a programme here in the UK, it would be safer to go ahead being under the guidance of a professional. But as far as I have been able to check out, there is only a centre in Houston, Tx, and looking at their programme, Parkinson isn’t mentioned - only stroke.
We have an appointment with nurse on Tuesday, I will ask.
Best wishes and let us know how you get on with patches.
Thank you,
I will follow Dr Clarks protocol putting the 7mg patch on Monday and taking it off Tuesday and then apply a new patch Thursday and off Friday. The weekend is 48hr pause then the same routine no Monday ect.
I think that I will use 5 HTP which is a precursor to Melatonin.
The other hormonal treatment he uses I will leave out for now.
I believe the micro dose is safe in my mind.
The improvements and EEG results were at 30 days and 60days .
Good for you! Are you taking Levadopa? Or some other medication? Will you continue with this while you have the patches?
Let us know how you get on. Take care.
I am using the patch and continuing levadopa meds as normal.
I also use red light therapy I am interested in novel approaches and use with walking exercise.
Hi Lar,
I will keep checking up on your progress.
My husband tried red light therapy on his nose as has difficulty breathing - always stuffed up! But couldn’t get on with the gadget - would fall out all the time, so we stopped.
We try and keep up the walking and do Pilates every so often - used to be every day. Try to have some sort of activity to do in the home, and perhaps something to do during the week. Although this can create a bit of anxiety! The Opicapone has helped enormously with the panic attacks and anxiety he was experiencing.
Hi Lar,
Just interested in how you are getting on with the nicotine patches? It’s been a while, now and you might have found they have helped. Would be interested in your feedback.
Hi Frances ,
I am still using the nicotine patch which is neuro protective I believe.
I can’t measure the protective effects unfortunately, but my understanding this happens . My pd symptoms are not too bad and I don’t seem to get on off periods .
I take the dopamine as prescribed.
I have noticed my right arm swings now why I am not sure ? Could be the nicotine patch or something else.
I have just started a course of melatonin which is said to be neuro protective.
The reporting on the effect of the nicotine patch is this subjective if I had an EEG machine I could be more precise.
So I just trust the science behind it and trust my instinct.
Hope this helps I don’t think it would hurt to try it.
Thank you Lar. My husband is starting to freeze and he gets very anxious. He also gets some hallucinations and gets confused.
He seems to be better when there are other people around. That makes me wonder what is going on!!
He says he will try the patches - we’ll see. Just seem a bit stuck at the moment - more meds mean worse hallucinations and confusions.
Thanks for your support.
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Hi @Frances54, we’re really sorry to hear that and understand how upsetting that must be.
We have tips for managing anxiety on our website, which we hope will be helpful. You can find it here: 5 tips for managing anxiety and Parkinson's | Parkinson's UK
If you need to speak to someone, please call our free helpline on 0808 800 0303 and our specially trained advisers will be happy to answer your questions.
Wishing you all the best,
Parkinson’s UK Moderation Team 
Hi Frances , melatonin is also neuro protective I have just started a course and it also helps with sleep.
Have a look at parkibot which is an AI site and can answer your questions about Parkinson’s. You can ask it questions and it will give you the answers, for example what causes hallucinations in Parkinson’s.
Best wishes
Thank you again, Lar for providing me with this info. I will check out this parki site and see if I can get more knowledgeable.
I’ve heard about melatonin. I will ask the nurses if they can prescribe.
My husband is entering the stage where he wants me to do everything for him. I was hoping to stay back for as long as possible, as I fear doing things for him will progress the disease quicker. And it’s devastating to see a loved one slip away. A truly horrible disease. I’m so sorry you have it and so glad you are fighting!!!
Keep it up and May you find good ways forward.
I have just seen on X that lions mane mushrooms can help with neurological disease and there are several studies that have been done Get the X app and have a look.
There is always something new to look at
All we can do is try our best and hope .