it takes a long time to get fully established on a levadopa regime.
Little and often is the advice we got...every 2 hours.
This works well for many PWP.
Apomorphine is a DA and often provokes the compulsions again. We were told to avoid it!
No legal firm will touch a legal suit in the U.K. There is a lot about the legal situation in the Forum files....ask Ezinda to send it to you...I am sure she will...
Did you take advice about the cancellation of debt for vulnerable people?
Stay strong...you are working through this with great courage.
Thanks a lot for your reply,could you please let me know how many doses a day does he take I am on 3 hourly at the moment starting and finishing at 7 think your husband will take 7 or 8?Also is he on anything else,I am trying to reduce my levadopa it's Madopar I am on does the sinamet total 7 x75 or 8 x 75 only levadopa not the total amount.Sorry if this is confusing for you I have not explained it very well,!!
I hope you too can find a way forward that works for you.
Until a long-lasting levadopa pill is available I follow the advice of 'little and often' to cut the 'off' periods.
I agree activity is important but my husband has other problems that limit it so it's indoor bowls and snooker!
Do let us know how things go...I am a great believer in sharing to encourage other PWPs to look at ways of improving their control of this bloody condition!
Thanks lot for the reply to my post.I take a total of 750 levadopa during the day and 2 c r at night which is another 250 and a dispersable 50 first thing.
My consultant is changing and I remember I read a previous post that this works so will definitely be asking about this.
Thanks again for your help
love Anne ps Have been diagnosedfor nearly 6 years .
hi all, i have been reducing pramepexole due to the obsessive gambling. The specialist prescribed Entacapone. However there is a warning on these that warns about obsessive behaviour. Not realy wanting to chance it under the circumstances.
I have found less of relying on drugs best way.Of course they certainly help sinemet.I ve cut down from 800 mg total c/l to 3.5 with one 200 entacopone,which helps the most.I do get little obsessive but you can stay actice and use the energy for good things you enjoy.Snowmobiling ice fishing.
Today many things that are bad for us are pleniful.Good things are scarse,lol
I also have found I can rely on my cofffee in am no meds and feel good because we get replenished in our sleep
Your a younger PD .It usually is very slow so dont worry to much.Im 70 now had a good life never worry about PD
If you have concerns about your medication, please contact your consultant or feel free to call our helpline where you can speak to one of our nurses. You can contact our confidential helpline on 0808 800 0303.
