Many thousands of PWP have had their lives ruined by these drugs.
it is 10 years since the Mayo Clinic published research showing 1 in 4 patients on a therapeutic dose of DAs suffered catastrophic impulse control disorders....1 in 3 of men under 50.
But profit and greed mean that drug companies and neuros carry on promoting/prescribing them and lives go on being devastated.
No legal challenge possible as they print a small, inaccurate warning in the leaflet.
I carnt stand it anymore,go on go on,all that's done,no answers make my brain work,I just don't get it,I don't understand it all.Whats the difference between one and the other,whys my head feeling all scrambled up inside,please please someone explain the difference between them.
Whats probably the worse aspect of Hypersexuality in me at least was I needed to explore sexual adventures with my dear wife, now I have to say at first she was very in fact shockingly enthusiastic , well I dont need to go into detail do I just say everything, yes everyhing, you name it, but one rainy Friday we went to this club and she was quickly chatting to two attractive 22yr olds , and soon they were dancing, and I feel like a pillock dancing she looks so sexy so the more it went on I kNEW i HAD to act as things were getting out of control, we were asked back to a party but there were only three women and 30 blokes so I just drove past the address and that was not the first time I had put my lovely wife in harms way, eventually she sat me down and we talked and talked we were both unaware we were damaging a great marriage, and 2 or 3 shocking events later I stopped the HYPER IN ITS TRACKS, I put a really shocking video on my laptop and placed it where I KNEW SHE WOULD FIND IT,,,(she did ) and the pooh hit the fan, she was so disgusted and I also that I would look as such filth that she warned me if I DID NOT STOP she would go, I STOPPED It was FED4s ownd brand of aversion therapy, now it worked for me but it is very dangerous your partner must be willing and very understanding or it could backfire on you.
I HAVE NEVER BEHAVED THAT WAY SINCE THE HYPER IS CAGED
A warm welcome to the forum. I can appreciate that acronyms can be quite tricky to understand if your new to the forum, although I’m not sure what “DA” strands for either. Can you let me know in what context it was used?
Just to help you out a little, here are few acronyms that you may come across on the forum.
PWP: people with Parkinson’s
OT: other half
PD: Parkinson’s disease
PN: Parkinson’s nurse
Meds: medication
We also have a ‘newly diagnosed’ section on our website which has a lot of useful information to help and support you. Feel free to check it out in your own time here - https://www.parkinsons.org.uk/information-and-support/newly-diagnosed-parkinsons. We also run information and support events that are specifically designed for people who are newly diagnosed with Parkinson’s which you can also find via the above link.
Lastly, if you have any questions about your recent diagnosis or about your medication, you can always contact our free and confidential helpline on 0808 800 0303 Monday-Friday: 9am-7pm or via email at [email protected].
DA stands for Dopamine Agonist. Medication usually given first to newer /younger onset people with Parkinsons (PWP). For example, Ropinerol. They usually help with muscular stiffness but have a reputation for having obsessive /compulsive side effects in some people.
HI MAISIE WE HAVE BEEN THERE YOU ARE NOT ALONE ! The neuros reaction was not appropriate my husband came of the DAs gradually and the problem was solved without a catastrophic effect on PD symptoms Go to your gp or PD nurse and get further help another neuro if need be your man needs to be off the DA just like mine did HUGS xx
I have to say that since being on Azilect, Mirapexin and sinemet, that I have virtually no interest in all things sexual.
My wife and i (together 42 years) live more like brother and sister. We even have separate rooms.
As I am weaning myself off of these drugs I don’t feel any sexual urges returning.
Just having a flip through a few pages and saw your comments about the 3 meds. I have to say I still feel the need, nudge nudge. I have been married for 40 years and still find my wife a turn on. Ok we might not perform as often as we used to but it is just as enjoyable for both of us. I don’t think the 3 meds have done anything to stunt my sex drive.
This really does hurt so much , i was prescribed a DA in 2006 , it destroyed my marriage all the experiences i reported have come to be true, at the time i was not believed i was making things up to cover for my behaviour.
When everything had fallen apart and i could take no more i tried to get into our local psychiatric unit one night, they pointed me to AE where i left my DAs and i haven’t taken them since.
Do what ever you can do get off the tablets no form of OCB is ok i would sooner live slightly under medicated that go through that again.
I live alone now , things have been hard, but please please talk to your PD nurse no matter how embarrassing or sensitive, they can help they really can
Sadly, there are a number of people on the forum that have had similar experiences to you and it is truly devastating how hypsersexualitty has affected your lives. However, I hope your shared experiences will give you some comfort knowing that you are not alone - we also have a lot of information on this topic via the Parkinson’s UK.
I definitely agree with about speaking to a GP or Parkinson’s nurse about this; however, I would also strongly encourage that you or anyone else should consult with a healthcare professional before stopping any medication to prevent any further issues.
We have a wonderful team of advisers via our helpline service who are always willing to provide people with Parkinson’s with the help and support they need. Please feel free to give us a call on 0808 800 0303 or email us at [email protected].
