Hello Steve
Sorry to hear you’ve had Covid and it’s knocked you out for a while.
I was concerned that you’ve stopped taking all your Parkinsons medication. Have you done this with suggestion/support from your Parkinsons nurse and/or doctor ? As many of the Parkinson’s meds take time to settle and be at their best level for you, stopping them suddenly can be uncomfortable.
My thoughts are you need an urgent medication review to discuss other options, particularly with help to sleep. I’m sure you know that depression and anxiety are both part of the Parkinson’s package which sounds to be impacting you. A call to the Parkinsons UK Helpline would be a great place to start for help to talk through with someone. Best Wishes
Hello Plus1 and thank you for your concern and reply to my post.
If I had Covid it was quite mild and only a tickle in my chest that made me cough.
To clear up any misunderstanding I was diagnosed with Atypical Parkinson’s in June 2023 following a datscan that two neurologists said was abnormal and positive for Parkinson’s or Parkinsonism.
I have been taking Co-careldopa for this for about a year now. This has caused me bad sleep issues and fatigue. The sleep issues and fatigue were mostly caused by the Co-careldopa I was told by this top neurologist, see below.
So I went to see a top neurologist privately. He examined me and said that my Parkinson symptoms were all from my waist down and were quite mild. My fairly bad gait freezing he puts down to something else.
He examined my June 2023 datscan and said he thought it normal and has sent it away for a second expert opinion. He has not had the second opinion back yet.
Because of the sleep problems etc that I have, this neurologist suggested as a trial that I firstly half my Co-careldopa for a week, which I did and then stop it completely which I did about 3 weeks ago. I have told my good and experienced Parkinson’s nurse and I am keeping him informed. I am due to see him on June 4th.
I would say I am a bit more wobbly now and still having the gait freezing episodes after I have been seated for a while.
I’m cheezed off rather than depressed.
I can’t really do anything until Parkinson’s is confirmed or not.