Insomnia

Roy_S · April 30, 2022, 1:18pm

Tommy and Keith still quite active on Facebook, did you have an account?

Petec · April 30, 2022, 7:36pm

Thanks Roy I’ve had problems with Facebook twice somebody has tried to hack my account so I shut it down

T1 · May 1, 2022, 1:10am

Hi there Peter
Sorry to hear my favourite girl is struggling but she is strong willed so let’s hope eh?
On the 9th July we are all going to sports Parkinson’s try athalon it would be really great to see you there obviously I don’t know what arrangements you can make for Mam but I know it would be really good for you, details are on sport Parkinson’s website and you can always give me a call I will text you my new number and we can have a private chat.

YNWA
Tommy

Petec · May 2, 2022, 7:40am

Hi there Tommy really good to hear from you hope you and Suzanne are well it’s been so long since we spoke July is out for me as mam,s birthday will be on the 10th god willing and I have jasper to think about take care and I promise to keep in touch

T1 · May 9, 2022, 6:14pm

No worries but a shame, you would have loved it.

I’m back on co- careldopa and feeling awful, only been on it just over a week and have terrible oral thrush also recently my eyeballs have started to shake and I think still photos are moving .
I still don’t have a nurse and my doctor’s doors are still locked .
My consultant is in Stoke because Oxford one basically insulted me by saying I shake because I’m disappointed with my education. I hope he was wrong as millions of kids will be following us.
Maybe it’s a coincidence but after pduk won a ruling not to have any patients diagnosed with pd reassessed more & more seem to have suddenly had their diagnosis changed to FND just look at the thread
" maybe misdiagnosis" something is going wrong.

Tommy

Petec · May 10, 2022, 4:26pm

Sorry to hear you are struggling I’ve given up on GP, S I’ve got lumps on my fingers and toes i know it’s arthritis but my gp said not much point in doing blood tests it’s not important I’ve not been back there since I’m in parkinsons clinic in June the fatigue is killing me especially as mam is not very good but thank god for jasper and Liverpool fc keep fighting Tommy don’t give up I’m here if you need to talk YNWA