Hi Loopylou,
I'm really sorry that you are feeling so lost at the moment. It can all be very daunting, especially if you don't have the right support yet from your medical team. Fortunately, you have already seen for yourself that you are not alone. There is plenty of forum members ready to help and support you and there's also our helpline. Have you tried ringing them yet? The advisers and Parkinson's nurses there can help you with any questions you may have or even to point you in the right direction to get support near you. They can also chat to you about any work, benefits or health related issues, and they can also give you emotional support should you need it. Please give them a ring on 0808 800 0303. The helpline is open between 10am and 2pm today, tomorrow and on Saturday, and then closed until Tuesday, when normal hours resume (Monday-Friday: 9am-7pm and Saturdays: 10am-2pm).
Please keep us posted of how you are feeling and how things go.
Best wishes,
Mara
(Moderation team)