Hi DT, yes 4 years, I was told it’s a lot less hassle than having the rechargeable one. I haven’t had to have it replaced yet so I’m not sure whether it requires a general or local anaesthetic? I did ask my PD nurse & she said it’s up to the team.
Thank you @MrParki for your kind words. I’m now just very anxious to get a diagnosis of something so they can at least start me on treatment. Fed up with the body not working properly
You sound like you’ve been through the mill.
I hope you’re ok now and managing. The detection dogs- wow, incredible. How far off is it before they can actually utilise that method?
Have you chased up your consultant? I found it almost a relief when I finally received the diagnosis, as I knew then I could start to get the right meds.
My appointment with the neurologist is this coming Thursday 15th. It’s exactly that - just need a plan for treatment now
I feel one of the “lucky” ones if you can call it that.
My Mum had Parkinson’s my Dad passed away in the beginning of 2005 and my Mum passed away at the end of 2005. In 2006 I found my left hand had a tremor and if the truth be known it started before but with the events of 2005 I probably didn’t take any notice.
When I went to my GP she sent me to the hospital and I already had in my mind that I had Parkinson’s. So when the Consultant duly diagnosed me with Parkinson’s it really wasn’t a shock. For the first couple of years I didn’t take any Medication because I didn’t want to take pills unless I had to. Eventually the Consultant said maybe we should think about taking the meds as it is really better to take them earlier rather than later as I wouldn’t get back anything but they would help slowing down the symptoms.
So far so good. I am an easy going person with a happy disposition, I rarely get in a bad mood, occasionally I feel “down in the dumps” when the weather is lousy and I can’t get out and if I have a funny half hour because of missing the few friends and family of which there is only a couple of cousins and my son. We have moved twice since being diagnosed. The first time was into a flat from a house with our son in Kew then my husband and I moved into another flat but in Torquay Devon. This was my husband trying to get me away from my friends as he doesn’t want friends and says that I shouldn’t have any. Needless to say I am still in touch with every one. It wasn’t the only reason because we both like Devon and I had been coming here since I was knee high. I digress.
Since being here I have joined the Torbay area group of Parkinson’s. We have an exercise class every week taken by a lovely Parkinson’s physio. It is a lot of fun as well as being helpful. We have a social meeting once a month in a local hotel. Of course I have made some friends here as well.
I still see my Consultant and PD Specialist Nurse in the Hospital in which I was diagnosed in London. I feel grateful that my Consultant and Nurse are willing to still see me. They are both friendly they listen and offer solutions if I need any.
I am still much the same as when I was diagnosed except I have some Arthritis in my knees which are a bit stiff and it is not so easy to walk as fast as I could but I make sure I get out every day for a walk or meet up with someone.
Hi, me again sorry I forgot to say I still drive, the last time I handed my licence to the DVLA they gave it back with 5 years on it. Yeah!
Today I saw my consultant who confirmed that following my DATScan, I do have Parkinson’s.
Even though it was a possibility, it’s still come as shock. I’m still processing it all tonight.
Tomorrow, I’ll wake up… relieved, positive, strong and ready to move on with the long life ahead of me
Give yourself time DT, you’ll get there. This was us a year ago - my OH has Parkinson’s - and it does help knowing what the underlying problem is rather than living in limbo we find. Still uncertainties of course but then there are no certainties in life.
@Mountainair thank you. You’re right.
Hope you guys are doing ok
It’s good that you’ve finally got a diagnosis one way or the other. I’m sure it’s come as a shock, but now with the right medication you can get the control back in your life, it may be life limiting but that just depends on where you set your limits.
Good luck my friend.
We are, thanks.
Thank you, @MrParki, my friend.
Yes. Glad to have a diagnosis, but still a bit shocked by it all to be honest. I’ll be starting madopar (?) next week. Looking forward to taking back some control after 3 long years
Setting my limits high