My symptoms are fairly light:
* Limited right hand side motor skills (I refer to it as a lazy side)
* mild facial impassivity
* bradykinesia (significant in finger taps)
I also get pains across my upper back, but this could easily be a result of the years of bodily abuse, sport and the more general aging process, equally it could be a result of my condition.
I have, for now at least, declined the offer of medication (offered dopamine agonist by neurologist) as I am fairly compulsive by nature, and have possibly been borderline with regard to both alcohol consumption and gambling in the past. Scary stuff.
What I would love to understand more are the likely progression paths my symptoms might take - I have taken the DNA sampling to understand my chemical composition more fully, but given there are no Parkinsonian genes present, am at least comforterd by the fact that if anyone caused it, it was me by my life choices.
I'd really appreciate hearing from anyone who started with limited motor skills and how the symptoms changed over time ... are there any specific "markers" or DIY tests we can do to measure how things are progressing? and indeed keep track of to discuss with neurologists or Parkinson nurses.
I still find the whole thing slightly overwhelming, but finally fessed up to a friend with cancer the other day. He's the first person I've felt able to tell.
Living in hope that the scientists can find something sooner rather than later to control or cure the darkness within.