Living with Parkinson’s
Cells responsible for movement begin to die
Sufferer, family and friends can only ask why?
Many trips to the doctor, a CAT and DAT scan
Someone needs to diagnose but nobody can.
Though there’s many symptoms displayed, there’s room for doubt
But similar diseases can thus be ruled out
A life with Parkinson’s is the verdict spoken
Support is much needed for a life now broken.
Understand that tremor is not a nervous shake
Prepare to fall asleep when you should be awake,
And rock back and forwards to get out of the chair
Cos life with Parkinson’s is anything but fair.
Concentrate fully to prevent writing so small
Lean on the walking stick, save yourself from a fall
Beware obsessions and not doing things by halves
Like jew’lry making and knitting hundreds of scarves!
Crossed wires in the brain mean conversations lack sense
And lowering of self-esteem can be immense
Especially when pills are needed after each meal
Just to survive the day’s trials but never to heal.
Thank god for Ropinirole that stimulates the brain
Making movement easier, reducing the pain
Though it does help with walking and improves your gait
One of the side effects is you hallucinate.
Shadows around and seeing people who aren’t there
Nightmares and kicking out at those for whom you care
Though prescribed Sinemet, it can’t be found they say
Nurses try to do so at Parkinson’s UK.
The Parkinson’s Support Group meets every few weeks
Quizzes, massage, kurling, the fun for itself speaks
Twice a year all can enjoy a fish and chip lunch
Parkinson’s people really are a normal bunch.
Though they may shuffle not walk, and words they might slur
They’re intelligent people like they always were
They might need therapy to practise speaking loud
Dealing with such difficulties should make us proud.
If faced with someone who does shuffle and mumble
Remember it could be that their brain’s a jumble
Today it’s them but tomorrow it could be you
So when asked to support Parkinson’s, say “I do”.
Written with love by a friend
(To my friend and other sufferers of Parkinson’s)
Absolutely brilliant! Says it all!
Let's pull out all the stops and raise more funds.
Together we can beat this thing.
Hi Benji.Please thank your friend for letting you share this with us.
hi benji,wot alovley poem,thank your feind for sharin that with us,everythin he has express is so true.lovley x