looking for advice and shared experiences with parkinson’s disease

Hi Zenova

We are three years in from my husband’s diagnoses, here’s a list of things we’ve learnt so far and what works for us.

  • Always take meds on time, I know this isn’t always easy but it’s a must for us. Always take them with a large glass of water.

  • While on the subject of meds always re order them at least two weeks in advance, very often his aren’t in stock etc.

  • Try to have your meals at a set time every day away from taking your meds.

  • Protein. Theres a lot of information around not taking your meds with protein but we find avocados and bananas too ,

we still eat them but not at meds time, it appears to stop absorption.

  • If you have a really busy day try to arrange a quieter day the day after, the chances are you’re going to be tired.

  • Exhaustion. When you feel utterly exhausted you have to rest, don’t stress about the jobs that need doing, they can be done tomorrow.

  • Keep sociable. Either with old friends or new friends who are also in the parky club.

  • Exercise. You should be doing high intensity stuff, things that get your heart rate up I believe. For my husband it just exhausts him for days

so he does things like strength training, table tennis etc, it keeps him moving without depleting his energy levels.

As you know were all different and what works for one doesn’t work for another.

Hope there’s a few bits that you can take from the above.

Best wishes,

Minty.

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