I've decided that, seven years after being diagnosed with Parkinson's, it was probably about time I hunted out fellow sufferers for a bit of a chat.
I was diagnosed when I was 52 with mild hemi Parkinson's which the consultant reckoned I'd had for at least a year before coming to see him. Bit of a shock really, as I thought the shaking was down to a trapped nerve after suffering from a frozen shoulder! No such luck! I've spent those seven years, not exactly in denial because you can't can you, but trying to keep things as normal as possible at home for my husband. During that time we moved down to Somerset where I've finally been zoned into "the system" so have now got the support of a Parkinson's nurse and physiotherapist. But, no-one can really understand your situation better than you out there.
I'm very fortunate in a way because I was young when first diagnosed and the treatment is keeping things at bay, so as people constantly say to me "you don't look like you've got Parkinson's ". Don't you hate that?! But as time slips by so the meds have to be increased slightly and it gets harder to try to hide the shaky arm! My husband I think, is in complete denial about what's coming and so I fear he won't be capable of looking after me when the time comes, whenever that may be.
On a positive note, I took up the guitar about four years ago. I'm enthusiastically intermediate to terrible but absolutely love it. It's a fantastic way to work the brain to hand co ordination and has helped to strengthen my left hand. Worth mentioning to you all.
Right Ho, I've gone on long enough!
Would love to hear from anyone really