Tavapadon/Juvmo
Hi, does anyone know whether this medication (approved in the US) is likely to become available in the UK?
Tavapadon/Juvmo
Hi, does anyone know whether this medication (approved in the US) is likely to become available in the UK?
Hi Ed2,
Thank you for sharing this on the forum. We unfortunately, donât have any updates on this right now but you may find the information in this article helpful.
Sorry we couldnât be of more help if you need any further information please donât hesitate to get back in touch.
All the best,
The Parkinsonâs UK Moderation Team ![]()
@Ed2 Apparently this Might be released in the UK some time soon ..
August 8th 2024: The US Food and Drug Administration (FDA) has granted approval to Amneal Pharmaceuticalsâ CREXONT (carbidopa/levodopa) extended-release capsules for the treatment of Parkinsonâs disease. This novel oral formulation combines immediate-release granules and extended-release pellets, meaning that therapeutic levels of levodopa and carbidopa may be maintained with less frequent dosing to maximise âgood onâ time, defined as time without troublesome dyskinesia.
That sounds like just what I need. Hopefully the UK powers that be get cracking and approve it ASAP!
Cheers
D
Hello @Dusty68 in the paper today. 8/10/26
A new pill for Parkinsonâs disease is raising hopes of a breakthrough in treatment after a trial suggested it reduced the symptoms that hit sufferersâ quality of life.
The drug, called solengepras, cut the time when patients had âoffâ periods, when they felt unwell or stiff, slow or shaky.
Patients also felt less sleepy and functioned better, the scientists said.
Existing treatments for Parkinsonâs work by increasing dopamine, which is reduced in the brains of sufferers, but those drugs may cause nausea, hallucinations and involuntary movements, usually of the limbs.
Solengepras works differently, blocking a receptor called GPR6 that slows down movement. It was developed to reduce the risk of such side-effects.
Morning mate.
Yeah, over coffee earlier, I saw something on the news on the âtickerâ news reel so I googled it and found an article on âMail onlineâ I think. Great news but it mentioned 2-3 years before it would be authorised in UK, and thatâs the frustrating bit, red bloody tape!
Iâd be happy to just sign a waiver and start taking it to be honest. What have I got to lose ![]()
I read something a few days ago about a drug which is normal release mixed with slow release meds but Iâm sure it was a different name, may be not. Iâll try and find it.
Cheers
D
I just realised, it was you that posted that other drug info ![]()
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. I need another coffee.
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Cheers
D
Iâm wondering whether or not this could be an alternative to the Produodopa pump? Iâve been offered the pump but feel Iâm not quite ready to stick needles in my belly every 3 days just yet. Itâs a huge step! It was explained to me that the pump âirons out the peaks and troughsâ we suffer. I.e. off and on times.
. It sounds like this new drug does the same thing.
âLet the beast looseâ!
Cheers
D
Hello @Dusty68 one big draw back ( no thatâs not sex related. !) You have too ware the pump all day .. even in bed . Apart from a bath or shower .
Ok if you just sleep on your back ⌠You also have a very slim tube you have to route from pump to needle .. and the medication liquid can burn the skin ?
Needle has to be changed every day .. itâs a simple thing and itâs a plactic needle with a patch over it . Have not one here to show you .
[quote=âPolomint, post:9, topic:50139â]
Hello @Dusty68 one big draw back ( no thatâs not sex related. !)
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Regarding the Pump (not sexually related either
), I hear infections are common too.
I also see it restricting me a lot physically My 4 yr old grandson loves to play rough n tumble with grandad, Iâd miss that a great deal.
Cheers
D
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