Hi Cc
I'm also on ropinirole XL 14mg, which is virtually the same as requip XL, and I praise them, they are the only meds I have been on since first diagnosed in 2011, and they do wonders for me, luckily with no side effects. I like you feel lucky that I have meds that suit me without any problems.
It is so sad that many people have such bad reactions to DA's with dire outcomes , as these meds don't suit everyone, as we know.
Sheffy
I find it all a bit scary . I feel at 45 I need to stay off the levodopa for as long as possible . I worry about the side effects of the da's but its reassuring to hear some people are not affected . It seems to be a very difficult decision to make . Glad you are doing well cc and sheffy .
Hi Maddison I'm 58and was diagnosed in September I was a bit scared to when I went on pramipexole kept hearing bad stories about them but for me they have worked I am only on a low dose three times a day but my tremor has gone and I feel different inside just like the old me. Hope all goes well for you take care x
Hi Maddison
You are right to be scared of DAs side effects I've decided myself that 18 mg will be my limit and I will not go any higher, even though I'm doing well on them and my oh has control of our finances also full access to my computer n phone I still worry and self check every thing I do that is not routine, I don't drink or gamble and have a very honest relationship with my oh we discuss everything,so if I started being secretive I'm sure she would notice, it might sound extreme but after reading some f the horror story's posted on this forum I'm hoping that it will be enough to prevent any disasters happening to me,
Live well. Cc
My post detailing the dangers of parky drugs and the marriage threatning situations they can create has been deleted, I think that was a mistake ,I was killing the love my lovely lady had for me in ever more outrageous sexual adventures, It was fun at first, and we both tried everything, I cant explain any detail here or my post will evaporate,removed by the thought police me thinks, anyway the cause of my shockingly perverse behavour was a little white pill,, the name of CABERGOLINE, it turned me into a creature I didn't know and as I became worse and worse and my list of perverse demands grew longer and even more , I expected her to go along the with my plans,and after one month of this , and I freely admit to behahaving in a manner likely to wreck the love we had, which was obvously stronger than I could ever had imagined most folks would have abandoned me, sickened and dsgsted, hell even my wifes ex warned me, and thank god he did, I TOOOK THE BULL BY HE B???????S and as despite my pleas for help the supposed specialists were unable or unwilling, so I moved to NTGH RAKE LANE, NORTH SHIELDS and I am so pleased I made that move, for now I have arguably the greatest team in he country taking care of me, when I INFORMED THE BOSS ,Prof Richard Walker, of my turbulent dangerous behaviour, he asked my Nurse Consultant, into his office, she immediately scrapped the CBERLINE, and within 48 hrs old FED was back to normal, I cannot thank my new team enough I WAS A POTENTIAL THREAT AND THEY SAVED ME
THANKS GUYS I OWE YOUBIG TIME
MAD FED Mc MAD
andoned
folks would si
the trouble is these behaviours creep up on you and seem normal at first. Then they become secretive. It doesnt matter how good your relationship is, how honest you are with each other. who has the credit cards. It doesnt matter a jott. there is no protection, there is no way of avoiding it if its going to happen. to quote the daleks 'resistance is futile' because you have become a dalek.
I am not overstating the case.
I fully support your view, Turnip.
The side effects are dose-related and as the dose is slowly increases the likelihood of OCDs creeps up too.
The PWP doesn't realise the behaviour is beginning to cross the line into abnormality...and exults in hiding it.
Looking back my husband describes it like dabbling with heroin.
He believed he could control it...
Patients need to take great care and make those close to them aware of the dangers.
But like you, Turnip, I believe the journey inevitably leads to disaster.
GG
I think we've opened up a can of worms here Cc!!
I know the side effects have been gross for a lot of people on DA's but there are others who are safely taking it, but I agree with you Cc I will probably just go up to 18mg but I may carry on if everthing is fine. In fact I'm not keen on taking any of the other meds because of their side effects ie., nightmares, restless nights flinging arms and body about, sickness, urine changing colour etc., It doesn't bear thinking about.But where do we go from here??
Sheffy
i slightly disagree with gg that bad results are inevitable, its just you are playing russian roulette without knowing if there is a bullet in the revolver.... been ok so far, click
Hi Turnip and Sheffin,
My husband has experienced none of these side effects in the 4 years he has been on Levadopa, so don't be afraid...many patients do not experience any side effects .
And I apologise, I did not express myself very well, I did not mean to imply that all patients will experience OCDs whilst on DAs.
1 in 3 on a therapeutic dose will and 1 in 2 men under 50, according to Mayo Clinic research.
I meant that once someone has crossed the line in finding huge rewards from deceit and secrecy covering up their demented behaviour, they won't stop voluntarily or seek help as they see no problem.
The end of the journey won't be reached until someone close discovers the truth, usually when disaster strikes and financial meltdown or relationship breakups or even criminal activities occur.
I realise that people who find the DAs control their symptoms well do not want to hear about the possibilities that the drug will destroy the lives of some who take it, but I will keep urging PWP to learn of the dangers, alert friends and relatives to the need for careful monitoring of money and behaviour.
I will do anything to spare others the devastation we have barely survived.
Love
GG
GOY
FE/?ING fe.??<ng hell Turnip, yet another post has vaporised, my wife has been prattling on asking very silly questions and annoying me genrally whil trying to send you this post, so whilst attempting to explain the bleeding obvious over and over, I FINALLY got through, we are extending outward our home is in need of more space and a downstairs wet room sower/utility, the plans are passed and last night Archie Tect, nice bloke ,called with the finalised plans and beloved had her be awkward for no reason head on,and was making waves, today she has her dumb dizzy blond head on and just decided to wind old fed up, I do not take kindly to this, but any way its sorted, I am now going for a shave and we are off to the GRAND HOTEL, TYNEMOUTH, it is called THE GRAND HOTEL TYNEMOUTH, COS ITS OVERLOOKING THE MOTH OR EVEN THE MOUTH OF THE TYNE,,we like to arrive about 12 mid day as its nice to sit and watch the river traffic, which can on a good day be manyvastlarge vessels, I like this beloved has not the skightest or slightest,,,,so the main reason of the post,,, after initial contact with any of your work I will refer to you as first MR T, thenceforth T, the reason is simple, your screen name Turnip, it implies a person who is a bit lacking in the intellect, and you sir are light years ahead of that assumption, RESPECT "T" RESPECT so if you dont mind I will refer to you in this way in any future posts, or you can recieve one of my F.U.C AWARDS, or both, as you wish all those who agree post YES, those who dont ?????off ,ah democrasy at work you cant beat it T
BEST OF BESTNESS TO YOU MR T
MAD MICK Mc FED
i like the moth of the tyne - a giant insect attacks South Shields. I have a great deal of sentimental attachment to the north east of England. I quite fancy being Lord T of Farne. Or perhaps the Duke of Farne - that has a nice ring to it. Though not very democratic.Pehaps Mr T, but thats taken so plain old T will do nicely.
I am new to the forums and was interested in all your comments particularly about Requip XL. I am in the process of weaning my husband off a 24 mg daily dose as he is beginning to exhibit many of the side effects, and early signs of dementia. My husband was diagnosed 17 years ago with PD when he was 50. He was put on ropinirole immediately. We were told it was an experimental drug. He also takes 7 100mg of Stalevo and 1rasagiline daily. He has just been given modopar to take one when he needs a boost. It has only been the last few years that he has allowed me to go into his sessions with the consultant and the nurse. I think he was trying to protect me, or hide things from me, but I also realise I was burying my head in the sand and didn't want to accept what was happening to us. His mobility has suffered since coming off the Requip but he is showing signs of improvement re his obsessions but I don't think I will ever get my husband back as he was with regard to his mind. To be honest the last couple of years have been hellish and I try not to think about what is to come. We just have to get on with it I guess.