My ex partner was diagnosed with parkinsons in 2003 but delayed taking medication until 2 years ago, this has not worked well for him. He first became aware that something was wrong in 1994 but refused to acknowledge it, I tried for many years to persuade him and the medical profession that all was not right only to be given counselling and pills myself. When he did recieve his diagnosis two years after we split, I felt as if I had suffered a bereavment, feeling such a loss at all the wasted years of futile suffering and stress on both sides and also a sense of relief and anger that I now had a name to pin on what had been happening.
We had both been through the treadmill because of no one listening to me.
Unfortunately he presented himself with mild physical symptoms to the GP and Consultant, and omitted to tell of the main stuff that could have lead to a more in depth diagnosis, I still suspect Lewy Bodies or Dementia and we now cannot get an MRI scan done as everyone says what is the point as he has Parkinsons. Yes I am back where I started only I am now not well myself and cannot afford the stress that all this is causing me and him as his quality of life is very poor. I would love for him to be on a research scheme and am not sure how to access any such work.Its worse for him than it is for me but I am near breaking point with the fluctuations in his mental and physical ability.