Hello Rolomillrace
You are most certainly not alone in having dexterity difficulties and the fine motor skills needed to do many of the things you described, can make everyday tasks very frustrating. There are things you can do if you are ready to accept you may need to change how you do things. That may be stating the obvious but you may be surprised at how many resist change and continue to struggle when there is no need. Equipment is a case in point. Folk can be resistant to accepting equipment because it for example, ‘shows the world’ you are disabled, or stops you denying your Parkinson’s has progressed or whatever other similar excuse you may use. It is my personal view that to see these changes as a positive needs a mindshift change in many from seeing change solely as a deterioration to viewing the changes needed as a means of staying independent. Only you will know when that time is right for you.
Some things to consider may include:
Make use of the period when your symptom control is at its most effective
Look to see how tasks may be simplified
Manage the frustration it can generate
It goes without saying that these can be more difficult if you are still working but your employer should be supporting you assuming of course they know.
Looking to simplify tasks can mean all manner of things such as:
Food preparation - use frozen or ready prepared foods
Arrange your kitchen so that your most commonly used item are easily to hand
Look at how you carry things and lift things - might a trolley help (it doesn’t have to be a 'disabled trolley ’ I actually use a drinks trolley just make sure its stable to walk with) I also find drawers easier to manage than cupboards. I have my plates and bowls on a two tier drying rack on the counter top - much easier than a pile in the cupboard
Dressing - I wear elasticated waist trousers which if worn with a tunic or long blouse can look smart despite the elasticated waist and most dresses I can just pull over my head. You may find a button hook, dressing stick or stocking gutter helpful. I use a long shoe horn a lot. Since you mentioned it specifically you can get stands for hairdryers so you are effectively hands free when blow drying hair.
If you struggle to get up from a chair check the height is right for you and put raisers on if too low also be aware of your technique - move forward on the seat first, use a chair with arms and lean forward putting ‘nose over toes’ before pushing up.
These are just a few ideas, with a bit of thought you will probably find ways to simplify what you need to do. Some of these may see not anything much. The point is anything you struggle with uses more energy and these little bits have a cumulative effect on your energy levels.
Managing the frustration can be very difficult but if you can find strategies to reduce the impact you are halfway there. My preference is to stop and walk away for 10 mins, get a bit of air or make a cuppa - it can make all the difference.
This is quite a superficial post because it’s not practical to cover everything but maybe it will start you thinking a little about your routines etc.
Finally the NICE guidelines for Parkinson’s states you should be reviewed every 6 - 12 months. In your shoes I would contact my consultant about review.
Do hope this has been of help.
Best wishes
Tot
I