Hello Emily I also take Clonazepam & Melatonin. Sinemet is my Parkinson’s drug along with Rasagiline.
Best wishes
Steve2
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Hi Geoff,
I am gradually increasing the ropinirole and I nearly stopped taking it at the beginning because it made me feel woozy. But I’m glad that I persevered because I’m adjusting to them well now and they do help my painful and restless legs. I am going to be taking levodopa in the near future so hopefully will tolerate that too.
I’m looking forward to going to the first steps group meeting soon and I’ve been gradually letting people know that I have Parkinson’s, like you said we have the same condition and it will be nice to meet other people with it.
Best wishes
Dawn
Hello hope you are well.
How long did ot take you to get dat scan results?
Good morning,
I have the NHS app and after only 4 working days I saw that the hospital had sent a letter to my GP, so I asked my surgery to get a DR to call me with the results. So I found out very quickly that I had a positive result for Parkinson’s disease. Have you been waiting for long?
Best wishes
Dawn
Good morning
Scan was 2 weeks ago, i contracted the gp last week he said he had the results but i had to wait for the neurologist to contact me.
You may be waiting a while for a Neurologist appointment. I did get a copy of the letter from the hospital confirming my diagnosis but I already knew from my NHS app.
I spoke to my doctor and told him that my next appointment at Neurology was in over a years time so he referred me to the Parkinson’s Nurse and I was given an appointment very quickly and she was brilliant!
Its incredibley frustrating. My gp knows results and wont tell me, same as a nurse i seen at my annual check up. My nhs app shows non of my neurological stuft. I have many other health issues which it shows all apart from neurology. Was told 26 weeks end of February to see neurologist again. He also aksed for more videos of me walking. He orderd dat scan when i seen them end of February and it was all very fast. Im 39 years old this is driving me nuts my symptoms keep getting worse.
It really is so absolutely frustrating, especially when you know how much you are being affected by the symptoms and in need of help, if you had a scan 2 weeks ago I really think that it won’t be too long before you get your own letter from the hospital where you had your scan, they always send patients a copy.
Once you have the diagnosis you should be able to access more help through a Parkinson’s nurse and I really have found using this forum very interesting and also fun finding songs to add to the Favourites song thread!
Just annoying that they know and wont tell me. Every other scan iv had they have emaild me results when iv asked for them. Thanks for getting back to me its appreciated.
Hi Paul,
Not sure if it’s the same but when I had MRI scan my GP had the results but would not share with me and said the neurologist had to look at it first before reporting back, this took about 6 weeks to get results. I was in a bit of a state on panic at the time - concerned what they might find, fortunately it was all clear but the 6 weeks were stressful - so understand what your going through - think the NHS can be slow at times (don’t think they hold info from people they just want the nuro to review before reporting) Ive not had a Dat Scan as my neuro said that DAT scans are not necessarily proof you do or don’t have Parkinson’s. So put me on meds instead…… which are helping.
Take care
Thats just the thing. I have a myriad ov health issues the last 3 years i had a stroke at 38 years of age due to dissections in my caroitid arterys. I now have an aneurysm in my carotid artery. Iv had 8 ct scans and 5 mris which gp told me results straight away. This is more why its frustrating tbh
if Parkinson’s meds are working for you, it’s a strong sign of the condition.
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i was told 28days but my consultant phoned me immediately,
Good morning,
I hope by now that you have received your dat scan results?
Nope unfortunately not yet
Don’t get hung up on the datscan results as either way you’ll get put on the same medication.
Best wishes
Steve2
Not necessarily if they deem i have fnd. I know a few people who where dat scanned negative then just diagnosed with fnd. Either way i have just contacted my gp for an update hopefully hear something soon.
Hello Dawn59
Have caught up with your thread rather belatedly and just wanted you to know that I was prescribed Ropinirole when I was diagnosed and have been using it successfully since - last December was 15 years.
Tot
Good morning Tot,
Thank you for catching up and it’s great to hear that you are getting on well with Ropinirole.
I have been taking it for 7 weeks, 3 tablets 3 x daily and am also getting on well with it although at first it made me feel woozy which isn’t as bad now.
Good to know you are getting on alright with the Ropinirole, Dawn59. When I first started taking it, I was also prescribed anti nausea tablets - my consultant said it might make me feel sick and I would be put off taking the tablet. He assured me it would pass. Well even with the anti nausea tablets I still felt sick so heaven alone know what it would have been like without them. He was right though within a couple of weeks my body had adjusted to it and I have had no problems with the Ropinirole since.
Tot