Hi Maddison, interesting reply. I forgot I had been referred to a 'shoulder surgeon', by a rather horrible consultant. I decided to see my GP, with my husband in support, and said "this isn't a shoulder problem, my leg is affected too". That was the turning point when everyone started looking worried.
I feel guilty not telling people in general, as so little is known about Parkinsons. I feel I could be a very positive image, as I am incredibly active. Unfortunately I have decided to put my own peace of mind first. Friend and family still greet me with a slightly different tone in their "how are you". I sometimes feel like saying "not in a wheelchair yet!"
My mother had Parkinsons for nine years before she died, yet I didn't recognise it in myself! That's how much it is a 'boutique illness'.
Keep up the walking - and generally keep moving - I'm sure it helps.
Greetings J, VJ, Maddison, Elegant Fowl, Hartfelt and Swampduck,
My first time here since back in May. I was diagnoed in 2012 and on the anniversary in 2013 fell and fractured jaw in 2 places, then 3 weeks later had emergency abdo surgery and removal of 4 tumours! Recovery has been slow.
Now in good space. Was on Sinemet Plus but the tablets kept breaking so now on Co-Careldopa.
I try to live in the now, or to live mindfully and meditate and take each day as it comes. This is not easy but when I do manaage to live a day at a time, then life is good. I also try to exercise as much as I can and follow the exercise regime from my physio.
I think PD support groups must be very helpful but there are none where I would like them to be.
Good to hear from you again, Aberwells4! I also find it difficult to live in the present only. For so much of our lives we consider it wise to "plan ahead" that when we have a condition like PD, it's not a simple matter to alter one's entire way of thinking. But, as you have noticed, I also think we feel better when we focus on the present, because we can be more optimistic. That phrase "progressive disease" makes looking into the future frightening. When I was first diagnosed, I imagined that 12 years later I'd be in far worse shape. As it has turned out, I'm almost the same as I was then! So I keep trying to concentrate on each day as it comes now and to maintain my optimism.
hello J of Grey Cottage - what wonderful names we choose for ourselves!
So pleased for you that 12 years on you are doing well. Good news and encouraging for me, I do try to focus on the now but reading of how others are coping really helps.
Hi aberwells4 good to hear from you . Sorry you have had such a rough time of it lately . Glad you are feeling better . I agree it's probably a good idea to take one day at a time . As this is so new to me I've been trying to do that some days better than others . Monday was a bad day and went to work tues on just two hours sleep . I just felt really anxious . Slept well last night and today's been a good day . I've been trying to get my books done for accountant and was stressing over that . I've done them now . They're late going in . Should have been more organised . Normally wouldn't have been a problem but have not felt like doing them and found it difficult to concentrate .
hi i am also new to this forum, i also was 45 when i was diagnosed in march this year.i had a suspision it was Parkinsons prior to my diagosis. i had a DAT scan last October but had to wait until march this yearfor confirmation.I am a staff nurse and have cared for many patients with this disease and it does scare me to know what my future may hold. I am recently divorced so snoring is not an issue for me although i would love to have a new relationship
i'm I similar to you ,I'm sister on children itu , 56 divorced grown up children , youngest still at home.
i was diagnosed sept been off work since June due originally to foot op and then due to poor walking and tremor . Increasing requip xl slowly waiting for some improvement . Waiting to see occ health beginning of nov to see if can go back to work.
Much the same as kittens i was diagnosed last year with pd , although i do not work now my job was a supervisor i had a team of 15 cleaners who i was in charge off a physically demanding job which involved lots of walking on 3 floors of a big building so would not be able to do that now , but also divorced i have two grown up sons who still live at home
currently i am off work following a fall onto a spade and having severe hip pain which has left me with a limp and not being able to walk any distance without great discomfort . I have been asked by my employers for medical reports from my Gp and Parkinsons nurse prior to returning to work. I did work full time prior to diagnosis but have had to reduce my hours due to increasing fatigue.
