Hi, I sometimes put off going to bed because of similar problems, mostly related to turning over or sitting up in bed. I get up usually three times a night to pee, so tired that I am wondering if I will fall asleep while peeing. I recently started taking a requip before bed and feeling much better for it, peeing less often and easier to get up and go when I do need to.
Hi Night time is differcult medication is reduced during the night time to allow for stronger doses during the day when people are more active.
Personally I take modified release medication which in theory you can take once a day, however for me spreading the tablets throughout the day gives me less drop off or off time. At first I used to take them in three equal doses but found I was having very vivid dreams, so now I take them at breakfast lunch and with my evening meal the only night time tablet is my anti depressant again modified release. Arthritis type pain is also very common due to the body moving in a different way my joints are stiff and swell. Personally I choose to avoid taking medication for this and try to massage any affected area as even pain killers alter how my Parkinsonās medication works.
These are things that work for me please check with your specialist before making any alterations to your medication.
The support from Parkinsonās UK Guernsey Branch has been crucial to help me back from a very dark place.
Be patient but above all make sure that you are on medication that does not alter who you are.
Hereās to a good night s sleep
Mark
Hi,
I also had great difficulty in turning over in bed.My parkinsons nurse suggested satin sheets and pyjamas or nightie.
The difference is amazing I now turn over no problem at all.Hope this info helps.
Cheers Anne
1 Like
thanks, that is a nice idea, i will try that
1 Like
I recognise all these symptoms, but have managed to minimise them. I take my madopar at 8am, 1pm and 6pm and go to bed around 10.30pm. I isten to talking books on my Kindle for about 30 minutes then relax and fall asleep. I wake up at 1.30am 2.30am and 4am, but tell myself to ignore my dreams and relax. If I donāt then fall asleep again I listen to soothing classical music on an mp3 player (recordings of BBC proms work best). I go for a pee if I wake up. In the early days I had to resort to sleeping pills, but now I donāt need them. It has been a struggle over about 6 months, but I am almost back to a normal sleeping pattern. You are not alone and donāt give up hope, just experiment to see what works best for you. Poor sleep leads to a bad day for me so this has been my number one project. Best wishes, Bernie
My bed bar was a gift from heaven. Itās brill. I can get up in 2 minutes instead of 15. Really recommended.
1 Like
Hi Babs -
Being so recently diagnosed I really canāt say I have anything like the same problems as you have ā¦ all I can do is wholeheartedly sympathise, and tell you there are shadows of the same symptoms beginning to develop for me - in that everything is getting a little harder to do - especially getting up, which requires real willpower, when a year ago I was able to just jump out of bed without a thought. My neck, hip and knee pain is worsening - which doesnāt help of course - but I donāt know how much of all this is due to my arthritis, and how much is due to PD - do you sometimes wonder the same thing? I do believe in the power of prayer - so letās pray for each other, OK? x 
Vicdavies
Thanks so much for your message.
I always say that I never really know what pain.is my arthritis and which is my parkinsonsā¦
Will be thinking of you.
Babsx
Hi babswood and you too Vicdavies.
If you ever find an answer to your question is the pain Arthritis or is it Parkinsons ?
Please let me know.
My money is on Mr P
A special thanks to you babs, not just for sharing here but for the many, many posts on the forum overall.
Best wishes
Mal.
Hi there thanks for your reply.
At present the pain that I have in.my knees is deffo my rheumatoid arthritis.
The pains that I get in.my arms too is deffo my R A.
It is the all over pain that Iām not too sure about.
Hi Babswood & MalcT ā¦
According to my neurologist, knowing the source of my pain is unhelpful , my body scan shows arthritis just about everywhere - so the pain would be happening whether my PD is involved or not. We all know that the symptoms of PD are very variable dependent on individual experience - for instance, my brother-in-lawās PD involved very little pain ā¦ his main problem lay in the continuous, uncontrollable shaking of the right side of his body - whereas I have a comparatively minor jaw tremor which I can stop, if I try hard enough. As Iāve only just been diagnosed, this may all change of course, but I guess Iām stuck with the pain anyway - given that neither my arthritis nor my PD are curable.Not wishing to be negative, the same probably goes for the rest of us, huh?
All I know is that Iāve been helped a lot by knowing there are other people out there (like you two) who readily share their experiences and give moral support through this forum. Iāll try my best to do the same 
Hi Vic,
Many thanks for your latest post. (and at the fear of taking Babs thread off on a tangent)
Whilst I understand its not possible to replace all the joints in your body, for me its important to identify those that can. I think you already know I have had one knee replaced and last week my Surgeon has agreed to replace the other. At least that will give me a fighting chance to walk again unaided and exercise more to help with the other ailments I'm not sure if replacement is an option for Babs as she has a more complicated kind of arthritis, no doubt she will let us know. ( i sincerely hope she doesnt get upset that my 10peneth is not what she wants to talk about here, it was when I saw Parkinsons, Arthritis, and pain mentioned )
Itās been said many times and this wonāt be the last, we are all different and this is only my side of a very complex situation.
Please keep your chin up Vic, and I hope one-day all our prayers may be answered.
Hi Yes I have had my foot fused and a plate put in as everything meaning joints were crumbling and I used to be in agony trying to walk.Now my foot feels great and having my back fixed hopefully means I will be able to walk.properly. With my rheaumatoid arthritis I donāt know what it feels like to have no pain.As it is in every joint thereās always one one joint playing up mix that with PD well you can imagine.och well I aināt gonnae moan as its just not me. Ha ha.
Well said Babs. Im speechless.
XXX
Likewise Babs !! ā¦ You surely are the real deal !!.. barrow-loads of admiration for you here xx 
Vic
So glad itās not just me!
Day and night counting, shouting, pleading, promising, cajoling, singing, with/without footwear, massaging, tapping, crying oh the crying through frustration and then anger ( I could go on but itās not relevant)
Seconds minutes but not quite the hour yet. Sweating or freezing cold because Iām stuck. Feeling utterly vulnerable.
Thatās enough said I think. Just wanted to reassure you and also myself.
I have found one daytime help though, when my daughter or friend have calmed me down because panic sets in, if I watch there feet as they walk it helps me concentrate and get going most times.
Keep on keeping on.
God Bless You Snapper!
Must try !
Cheers
Hi @babswood
I too experience bad nights when I canāt sleep . No matter what do And by the time I do feel sleepy my medication starts wearing off You are certainly not alone
Hi all
Thanks for sharing, Six years in and still fighting hard to get people to share their experiences.
I am in truth a non conformist, I question every thing I am told and have with the help and support of both fellow members of our club and local medical staff found a way of getting the best out of my medication without losing myself to side effects.
Pain is constantly changing as are the symptoms daily stretches help to keep rigidity under control. These can be done while seated and are a good way to start and end the day. Alternatively massage is a good way to stop the body fro tightening up. Exercise is good as it is a natural way to produce dopamine, please remember a side affect of too much medication is to mimic some of the symptoms of Parkinsonās, and until we have any easy way to test our levels it is down to raising or lowering the level of medication we require.
Please only alter medication levels after discussion with your specialist any instant changes should be taken with a pinch of salt, time is required for the body to become used to even the slightest change.
Fight the good fight letās help each other with honest discussion and a little trial and error
Stay safe. Mark