At an early age, very few people give great consideration to a life changing illness affecting their lives and the impact that has on their immediate family and friends. For a time Parkinson's turned my life upside down, threatening to destroy everything I'd worked so hard to achieve. I've written a book about my life before, during and after my diagnosis. At first it was my intention to remind people of who I am, and how I got here, so people looking at me in the months and years ahead don't just see someone suffering with this debilitating illness. What I hadn't expected though was the immense tonic I received from recounting some of my life stories. The reason for the post is to try and encourage some other sufferers to do the same. The lift I got from writing my book has left me hungry for more from life and has rekindled my desire to fight and win as many of the daily battles with the disease as I can. Please give it a go, I sincerely hope that you get a boost every bit as big as the one I got from writing about my life.
Thank you for your post. Sounds like wonderful therapy! It was a great idea to write about your life, especially life before PD, and I am glad to hear it has given you a new lease of life. Have you put it online?
I am starting to write something about my stamp collecting acquisitions. I’ve often thought of putting it down on paper/hard disk but haven’t had the impetus to do until now, now that time feels more finite. It is very exciting to live those moments again!
Hi Sheryll, many thanks for your response to my earlier post. I'm just about to release "A Life Worth Living" electronically (within the next day or so) so it can downloaded onto an e-reader. I do however have 'hard' copies if you want me to send you one? I would really appreciate some feedback from a fellow pd sufferer. There wouldn't be any charge for the hard copy, if you like it and found that it did motivate you into doing something similar, perhaps you could make a donation to Parkinson's UK?? If you do want a copy, please send me the address you want the book sent to (via private email) and I'll happily post one on to you. Please do carry on with your own 'project' as if you're anything like me the tonic you'll get from looking back on your life will give you a significant boost. Please give me a nudge if I can help in any way? Simon123
Thanks for your kind offer. I have sent you a message with my address. Please let me know if you didn’t get it (you would need to have set your private message settings to Yes). I am looking forward to reading your book!
Hi Sheryll, all done. The book was posted to you earlier on today. Please let me know what you think. Kind Regards. Simon123
Many thanks for your prompt gift! I will send you something in return. And thanks to your encouragement, I have written up some life experiences (PD-related) and added them to my website. Thank you!
Hi Sheryll, I know the US is a vast country but we had a family holiday in Florida last October/November, staying in a lovely villa about 15 mins away from Disney. I'm sure that I remember 'Hillsboro County' being advised on the side of service vehicles? Do you live close to all of those fantastic parks?? We've been to the states on a number of occasions now and absolutely love it. Do you travel?
Hi Simon, The trouble with the US is that the same town name is often used in different states. I’m in Oregon, so no, I don’t live near those parks. However I did visit them in 2006.
We did a lot of sightseeing travel once we were married and even did the snowbird thing a few times, but in the last few years the only trips have been my going back to Australia to help out with family. There are quite a few photos of our trips on my website. The jewel of Oregon is Crater Lake.
In other news, I have lain my hands on something appropriate to send you, and hopefully I will post it early next week!