Good morning all,
I am glad that some of the comments may be useful, It is a little difficult for me to write on here sometimes, just because its difficult to keep it short which I am failing to do. Having lived with this disease and starting a branch you see so many different situations but if you can bare with me here are a few things we found helpful, After many years of seeing a Neuro consultant and many different registrar's we managed to change hospitals and came under a consultant for the elderly with a specific interest in PD we were still only 50years old, since that time our lives have been much better, and we were seen every three months and if there was a problem sooner.The problem with pd is that it is ever changing and once a year clinic is not enough even six monthly is a struggle sometimes.
If you are having difficulty with sleeping and are too stiff to move then you really do need to check with the doctor for a revue of meds, some people find the adjustomatic beds are good there are expensive and you can get doubles or singles pushed together, we tried many combinations but ended up in separate bedrooms and then my husband had a hospital bed which made a great difference.These beds are longer than normal but if you buy Ikea single sheets they fit really well without all the struggling.Another idea we used children's bed mats as they tuck in a little whereas some of the ads you get from nurses are just a square in the middle of the bed and they roll up. I always mentioned to members that it is useful to have a tablet, biscuit and bottle of water near so that if you get stuck you have it handy this is especially useful if you live on your own. Also if you live on your own please have a carelink button as my friend has been found on the floor several times now.
Jonnie I am not sure if that would help but my husband will still beat people at scrabble and enjoys college but he is unpredictable in his behaviour.
I had better end there but I do so admire you all as I know the struggle you are going through, have a good day
best wishes
vivian