I'm about to rewrite our information sheet on pregnancy and Parkinson's and would love to hear from anyone who may be able to offer a review of our current version. Your input would really help make sure the next issue has all the right information and is as useful to readers as possible.
If you have been through a pregnancy with Parkinson's I would love to hear from you. You can contact me at [email protected]
Information Resources Manager
My name is Irena Naumov,in January they diagnose me white PD, before that I was pregnant with my first child, I had small simptoms, like tiredness, slow wolk,but I didn’t know dat I have PD,after I gave birth my condition started to become worse, tremors,I could not walk,back pain…I had difficulty taking care of my child. When the doktor were sure 100%,dat I have PD, they started white smole trotman whit medications. Recently found out that I am pregnant again, and I am in the same time happy and scared, worried. I’m taking Mirapexin 3mg./1,Rivotril 3/0.4,Flunirin 1/1.But is not helping me white my simptoms.Cupel of days I barely walk,slipping problems, tremors, sometimes back pain.
I want that someone share their experiences with pregnancy whit PD.
Thank you for your time and support.
Hello @IrenaN86 and welcome to the forum.
I am sure some of our helpful members will arrive to offer support and share their experience soon.
In the meantime we have some information on our website that you may find helpful https://www.parkinsons.org.uk/information-and-support/pregnancy-and-parkinsons
If you need some more support. I would also like to suggest you contact our free helpline. Our friendly advisers can answer questions and offer support around all aspects of life with Parkinson’s. We are open Monday to Friday 9am-7pm and Saturday 9am-2pm and you can contact us on 0808 800 0303 or [email protected]
If you decide to fight the disease, you should know it isn’t easy. I had an experience with treatment, I started taking medication at the age of 20 when I had my first symptoms, and I took it for about 3 years. Then when I realized that the symptoms were getting worse, I started getting treatment from several specialists. It was important to me to have strict supervision over myself. I didn’t expect positive results.
I would recommend adding advice to the information sheet about being under the strict supervision of several doctors. And also, add information from here https://mother.com/stages-of-pregnancy/ about the stages of pregnancy. Moms-to-be should understand what to expect in pregnancy.