Totally agree PD is bad enough but it is often the opinion of others that bring us down,, no acknowledgement for the impact of this condition/disease.
I have been questioned about my financial position by neighbours 'do you get disability allowance ? Closely followed by 'its alright for some" when I dont put my bin out the neighbours dont do it for me as I am a fraud in their eyes....They see my curtains shut for days when I am too ill too go out, dont say a word. If the neighbour sees me going down the steps without using the hand rail I get " oh, you ok now, didn't need the rail then ?"
Oh could go on, yes people in the first few years of diagnosis with their gym kit on and cries of going to the gym everyday, I lost weight,I look great well I am pleased thats great but lets see more of the not doing so well people.. Lets say we are fighting it, going out when we think PD has given us a break, but lets also say its not always great,
Without that honesty who is going to support us.?
Pip's assessment is paid to help you buy the support, equipment you need, sometimes you only need it part of the day, sometimes all of the day. It is a complex system.
Ali P still popular in my book x