Hi there, Thank you for the advice, and sharing of experiences. The last visit with neurologist ssaw me armed with questions - he was not sure whether to hug me, or take offence. He decided that a hug was better for patient relations and answered my questions with a great deal of goodwill.
Husband was weaned off the seizure meds, because if it is REM disorder related to Parkinson's then seizure meds will not be doing any good, right? To say the experiment was a failure would be being polite!
A second neurologist, who specializes in deep brain seizures, was called in. I should say here that both neurologists are great guys, very empathetic and knowledgable. Husband has the double whammy of sleep seizures and Parkinson's. The seizures are probable due to a night time fall in 2014, which might have been because of undiagnosed Parkinson's. As some one here said, this disease is a bugger, if it can't get you one way, it gets you another.
Now hubby is on clonazepam at night for seizures, and levadopa during the day for Parkinson's. Of course we now find that the clonazepam can be addictive, and cause heavy night sweats. It also does not stay with him so that he has had a couple of seizures when he has fallen asleep in the chair, dozed off while watching tv. He obviously does not want to be so doped up he is a zomby (which has happened) but we are now in a trial and error situation. The local Parkinson's group seems to be OK with adjusting their own meds as they see fit, Not sure if I agree with that!
Anyway, an update from here. Thanks for listening