Was diagnosed 18 months ago age 47, symptoms were dropped shoulder and no arm swing. I get tremor when stressed or hard physical activity such as using garden sheers. Also get a bit of stiffness. I had the dropped shoulder 2 years before seeing neurologist, so it’s now 3 and a half years. I’m not on any meds. Apart from the odd heavy foot issue and a bit of dystonia in my foot and back, I don’t feel at all ill. I thought my tremor and other symptoms would be far worse nearly four years in.
Can progression be very slow in certain people, does anyone else have slow progression?
I was diagnosed with PD when I was 42, that was 20 years ago. I think the progression has been very slow and I am thankful for that. I had DBS installed four years ago and am taking a fair amount of medication. Tremor has never been a big problem for me, it’s my walking that has caused the biggest problems. I can cook my own meals, make my own coffee and tea, I can still smell things, I am doing alright, all things considered. I have seen PD for other people progress much, much faster, distressingly so.
