Hi Vic
She completed he 10k in 3 hours 27 minutes - 10 minutes quicker thsn last year. Needless to say, I am very proud.
Hi,
I am 65 and was diagnosed last year. My symptoms are not the same as yours. At the point I was diagnosed I was having difficulty walking, due to a combination of PD and a foot injury, difficulty getting out of a chair, constipation, and an intermittent tremor. Initiallly, I reacted well to a very low dose of Madopar (levodopa) and also benefitted from specialist physiotherapy. More recently, however, I have developed severe pain in my left leg and hip, and I’ve also had a bout of depression which came on quite suddenly, with a devastating result, since I impulsively resigned as a local councillor, having convinced myself I wasn’t capable of doing the job. I am now improving again, having increased my dosage of Madopar. I am waiting to see a physiotherapist and for some further investigation of my joint problems, which may be arthritis.
I think in your case that there is every ground for optimism. You have developed the disease quite late, and from what you say, you have improvement from a fairly low level of medication. You have also been an athlete, which means you are used to regular exercise.
I have benefitted from the ‘Parkinson’s Warrior’ exercises, which I was shown by my neurology physiotherapist and continue at the exercise classes run by my local Parkinsons UK group. I have run into difficulty with them recently because of the pain I’m getting in my joints. I’m currently seeking out a physiotherapist who can work out a programme for my particular needs. From what you say about your arthritis, you may need a tailor made exercise plan too.
Best wishes.
Thank you. It IS hard and I am also finding it difficult to cope with such a drastic deterioration in such a short time and at our age. I always knew that things would get worse, eventually, but was also hopeful that it would be a gradual decline so I could adjust to the changing circumstances.
Do you have any help?..
- and so you should be! … that’s a most respectable time … give her my congratulations!
x
x43m
Do you have any help?
I have carers come in the morning and evening but they are now being very lax in their remit. They take an hour to even do the basics of care when so much more is needed and I am increasingly having to do more as they do less.I have a sitting service twice a week for 3 hours to allow me to do the weekly shop and other errands in town.Meeting tomorrow with another agency.
Hi Vickie I can see that many people have replied to your post and given good advice, all I can add to that is I got a diagnosis aged 39 and it’s so hard to day to day and the sleepless nights, I also have I Isaac syndrome and restless legs with a good helping of really bad back problems .but you know what keeps me going is knowing that I only have two children and they both are diagnosed with autism . So the way I see this now is if I don’t keep going thinking positive And trying my best to stay fit even thow I am really finding that so hard, As I know with out me and my wonderful husband my kids have no one as family are not around by there choice. So please what I am saying try and keeping going and this forum has been my support, there are many kind and knowledgeable people On here who do reply and support. All the best 
i am going through them same sort of thing i was DX when i was 40 now i am 50 and i have had 10 decent yrs but i am not looking forward to any of it to come let alone waiting for the results of any on coming damage to my mental state?
You can’t live life wondering about the,‘what ifs’. It’s the here and now that matters, as I have recently found out. It may not happen, (a deterioration in your mental state), so why worry about it now. We never worried about the future until it grabbed us by the throat at the end of last year, very suddenly and unexpectedly. Read my previous post on how many years we had good times, you may too. Stay positive, I am trying hard to do so, despite the present circumstances. We lived life to the full soon after diagnosis, doing all that we expected to do in our 60’s. but needed to do sooner. We even did an around the world cruise, an unforgettable experience, (you can’t take it with you), and our adult offspring have always said spend their inheritance now, and on yourselves.
Hi Vic/Tom I’m glad to see your badly required thread grow after a slow start but I had every faith it would as people like yourself living with multiple conditions which make the mental health aspect of PD alone even worse I’m sure you know what I mean by that.
I’m sure you’re thread will continue to grow and help an awfull lot of people and also create great interest from people like me and many others.
Keep up the good work and I wish you successful treatment for all your aches and pains and mental problems as they present themselves over time . Good Luck and Peace of mind to you friend. Tommy
Hi penfold
Sorry for late reply, I understand fully, but it’s what you said you are waiting to hear from results, I hope they where ok and you are too.
Hi Benji
It’s
Is so nice to see that people like you are still around.yes at times I do sit back and say they have got it wrong, or it’s not the right. But I can say not able to sleep and not walk very well, and not able to eat my food too, I don’t think I am a giver up, my hands are so full with life throwing things at me some times fast and some slow. I but there are times when I look up and stout out and cry, wishing everything will just stop. You see we have no family support and that to
Me is what hurts, like I said I have two children, but look at our luck they both of them have autism . So you see keep smiling and thinking forward is hard for some people. But I look at them and they keep me going. You are doing a great job, your support to many people is really warmly revived and that includes me,
Hi Vic
Support . Friendship. Sharing and a thousand more good things are found on here in limitless supplies
Always someone here for a ear to listen or that virtual caring slap in the face
We all have our moments
But i will say this Vic
Even before my parkinsons.
The only time i ran was when i was being chased
Friends here are endless
Count me in to
Keith
Hi vic
Yes you are so true the only time when you need someone to hear you and to understand your illness they don’t, but I have had very good advice from this site, how are is this run and can we walk it too?
Thanks Raz.
Raz - I can’t express my admiration enough. One of my granddaughters is autistic - just one, not two, like you! - and both her parents are 100% fit - not suffering multiple conditions, like you! - but even so they find her hard to manage. You are so right about keeping a positive attitude - but I know how hard it is to do that sometimes. My prayers are with you - God bless you, your husband - and those precious children of yours! x PS - I don’t know about any runs … maybe you misunderstood … I know I posted here that I was a runner before PD … but it’s the last thing I can do now!
Thanks so much for those good words Keith - there’s so much suffering in this world - but three things matter above all, don’t they? - friendship, a listening ear … and knowing you are loved.
Cheers mate -
Vic
Tommy - Thanks and God bless, - we’ll hang on in together! 
Hi again Benji -
It certainly looks as though you’ve taken (and are still taking) whatever action you can, to get the help you need - sorry your present carers haven’t been as good as they should be - good luck with the new agency!
Cheers -
Vic
Even on our worst days we can be strong
AS WE ALL STAND TOGETHER