The 2 main areas of concern that were discussed with researchers at our last RSN meeting were; the long term side effects? and would it work for me? Whilst waiting, up to 5 years ,for any possible improvement, the usual medication would still need to be taken
Just ensure that you are not getting just any type of stem cells, they need to be specific, that is embryonic stem cells. Adult stem cells can not be converted into any old other type of cell, eg bone marrow cells naturally develop into blood cells but not brain cells. However, embryonic stem cells can be converted into any type of cell in the human body.It's called pluropotency.
There is also the ethical issue concerning the use of embryonic stem cells which has, to some extent, been overcome by producing a continuing self reproducing line of such cells so that it no longer takes cells from 6 embryos to transplant enough cells into one side of the brain.
It is still experimental, and I suggest you contact PUK for further information, and especially the Research Support Network. None of my information is firsthand, just gleaned from visits to a local university which conducts such research and therefore should be be taken as reported information.
We also discussed the minimum benefits that we would deem to be acceptable if we underwent stem call therapy; varying from slowing the progress to a return to near normal function. The ensuing discussion proved very interesting as to each individuals expectations. Mine, after 19 years, would be slowing the progression or just a mild improvement but those, more newly diagnosed, wished a return to near normal function. However, we all accepted that we would not see the benefit in our lifetime but we attend, and provide input, to hopefully improve things for those diagnosed after us.
I wish you well in your quest for an improvement but beware of false prophets. If I could be sure of any improvement, with any of the suggested interventions out there over the last 19 years, we too would have spent as much as it takes. Hope is good, but enjoying your life now and not wishing for the moon, has proved good enough for us. Following the rainbow does not find the pot of gold.