Tomorrow - D Day


#1
I first cam on this site nearly 3 months ago, when a nurse at the hospital asked my wife 'how long had I had the PD diagnosis?, to which she replied he hasn't got PD!" However after talking to the nurse and answering questions began to think that this was probably the reason I had not been right for at least a year. Went back to GP told him and asked for a referral. He seemed to agree that there was a problem one side and said it could very wellbe PD. Neurology appoints at darent Valley Hospital tomorrow morning with a Dr Delamont. Sounds funny but my wife has spent hours on the PD site, bless her really hope it is that and I can get on some meds, after all this it will be awful to be back to square one - knowing I am not right but all other tests have proved negative.
Does anyone know of Dr Delamont? Any idea what will happen tomorrow - will I start on meds straight away - according to friends (and DVD's of our recent cruises) I have had the symptoms since beginning of 2010 and am very slow, shuffle, lost confidence, lost interest, have a mask expression sometimes, don't swing my arms when I walk and am inclined to lean to one side. Have bladder trouble, my writing is no longer legible (yet I was an admin man in RAF for nearly 30 years then admin man in local government for 15 years! Other than that I am fine!! I am 74 years of age, but until 2 years ago could easily pass for a 60 year old.
Any advice would be appreciated. Thank you

#2
hi michaele, when i was first diagnosed i went into see the consultant and i think the moment i walked in the room he had me diagnosed he gave me a physical examination got me to walk up and down of course i had no arm swing in the r/side and from that he said i had pd i did not go on medication for 4yrs after diagnosis, i also had a brain scan to rule out any other cause, but i suppose all consultants have there own way of doing things, you seem to have a lot of the classic pd symtoms, i have had pd 9yrs i was diagnosed when i was 43, but life is not all doom and gloom you just have to adapt and do things slower once you get on the meds you should feel a bit better it wont happen over night but you can still enjoy a reasonable qaulity of life good luck with your appointment.sue.

#3
Thank you Sue for taking the time to respond. Mike

#4
Hi Michael
every neuro is different - with favourite medecines and diferent opinions.
Given your age i would bt on you going straight onto levadopa (sinemet or madopar). These should have an effect quite quickly. We shall see!
anyway good luck

#5
Well been to the hospital spent nigh on an hour with registrar then consultant. All sorts of tests, they have said I have some parkinson tyoe symptons but are sending me for a DaT scan an MRI and a spinal test. I also had 7 phials of blood taken including encephalitis and zinc and copper. They have said it will be about 2 to 3 months before I see the consultat again with a diagnosis but that it is better to have proper diagnosis to treat than to have wrong medication.
My wife and I both feel a bit bamboozled - we were convinced we would have had a diagnosis and treatment plan by tonight. Ah well, looking firward to a brilliant Christmas with the Family.

#6
Hi there
Nil Carborundum - or as they say "Don't let it grind you down". If the diagnosis is pd there is not a lot you can do about it. Just plod along in your usual way and fight things as they crop up. Any time things get a little heavy for you, come on the forum and let it out. There's plenty of listeners who will cheer you up. Best wishes

Chunky